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Breaking Down Physically and Mentally

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Rocky1 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Topic: Breaking Down Physically and Mentally
    Posted: Oct/11/2017 at 8:51pm
Well I was fused l-4 to S-1 Feb,13,08 it was good for a couple years,. Since I have had torn rotators cuffs both shoulders. Both knees torn meniscus 3 surgeries left knee 2 on the right. Disk out at l-1, l-2, l-3 also to day I learn C-5, C-6,C-7, right arm. I have no strength and pain to the finger tips.  I can't sit, stand or lay with out pain. Almost at wits end.
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: Oct/12/2017 at 1:38pm
Hi Rocky1,

I am so sorry that you're suffering so much and in such a low mental state. I know all too well about both states from my own personal experience. I am not trained at all medically, but I would very much like to help you, if I can.  

Please can you bring me up to speed with any treatment you're getting? When did this level of pain start? Have you seen a doctor or other medic recently?  Are you living alone?  I'm here, I care and I'm listening but  I really think need professional help. So please make an appointment with your GP at the very least.

Keep us posted!
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Oct/12/2017 at 2:20pm
Well about 4 months ago I started having pain in the back of my right knee. went to see the dr. 5 trips last trip I demanded a MRI to check my fusion explaining that when the pain hits my knee collapses and I fall and I can't take any more falls that my shoulder has been killing he looks it over I explain it hurts and I get pain too my fingers. MRI comes back straight to Neurologist. They do a EMB then finally admits my back is in bad shape disk out at L-1,2,3 and root impingement on L5. I ask if they could help that I keep falling. They push me off to a surgeon. I get a hold of dr office my shoulder and arm are killing me. I CAN NOT TAKE IT ANY LONGER. they bring me in and do x rays and schedule MRI on cervical. They check x rays and say we will do the MRI but the x ray shows C5,6,7, have no space and that is what is causing you pain. finally 4 months later they acknowledge my pain in my shoulder and arm and Leg. 
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Oct/12/2017 at 4:27pm
Hey Rocky,

Sorry to hear how much pain you’re dealing with. It sounds like the dr’s have at last done enough checking to locate where the pain is coming from. That’s a first step. Now what are they going to do about it.

What meds are they giving you Rocky? Lyrica or something like it might help some of the nerve pain. There’s no doubt you need some pain management. The standard treatment usually includes something for inflammation, nerve pain, spasms, sleep, and the depression that accompanies being in pain 24/7.

Do you have an appointment yet with the surgeon? It sounds like surgery might be needed. There’s a lot of information in the forums, and the Articles section on the left. Talking to people who understand how bad it can get, helps. Don’t give up. Vent all you want, we’re here to listen.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Rocky1 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Oct/12/2017 at 6:59pm
Well I am diabetic on top of it all and have been on 2700 of gabapentin for several years. so it is not helping much. no other pain meds. Tried to contact the surgeons office today to no avail. I requested some type of pain management they said that would be the surgeon.
 
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Edie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Edie Quote  Post ReplyReply Direct Link To This Post Posted: Oct/12/2017 at 11:53pm
I am sorry to hear about all the health problems you are having, and all the pain you are going through.

If you have not already done so, I would suggest you try to find a regular doctor, like a family doctor, or an Internal Medicine Physician who is willing to take charge of your health care management. This doctor would order tests, and guide you as to which specialists to see. After the specialists look at the results of your tests, they can make some diagnosis, and decide what kind of therapy is indicated. If you need medication, your main doctor would be the one who would take care of that, unless he decides to refer you to a pain clinic.

Be aware that at the present time it will be very difficult to find a doctor who will prescribe any kind of controlled medication, but you still can mention your pain to your doctor and see what he can do to help.

I am worried about the constant falls, they can be dangerous for there is always the possibility of braking something and making things worse. You mention something about a fusion, and it seems like you relate that to the pain on the knee and the falls. Is there something wrong with the knee? Where was that fusion done? Was it in the Cervical spine? Have you had an MRI on the knee? I not this would be something to discuss with your doctor.

I see you had Cervical MRI done. The results of this should be looked at by a Neuro Surgeon so he can evaluate your condition and make a diagnosis.

For the knee and the shoulders, your regular doctor can order an MRI, and then have an Ortho surgeon examine them for evaluation.

Chronic pain is very devastating. I am going through it, and have been at it for 10 years. So I understand how you feel. Try to be strong, keep trying and never give up trying to find something to help yourself.  Besides my medication, I use many of the non traditional alternatives to medication that do help some. I am talking about stuff like exercise, walking, stretching, massage, balms, oils, hot or cold pads and rest and relaxation, it all contributes to a certain amount of relief. And for the soul. talking. Talking about what we feel is always of great relief. If there is nobody else to talk to, we are here for you. Always!
Chronic pain throughout the spine caused by osteoarthritis (DDD). Started at neck, spread to thoracic, and lately to lumbar area. Most of my spine is affected by bulges, disc height loss and dehydration, bone spurs, annular tears, foraminal stenosis, probable nerve impingement, and degeneration at end plates and facets.

The disease extends from Cervical C2-3 to C7-T1. Thoracic T4 to T10.
Lumbar T12-L1 to L5-S1.
It is all non operable.

Other conditions
TKR R Knee.
Torn ACL, MCL L knee,
Pain on legs and calves
Deep vein thrombosis
Migraine headaches
Painful spots all over scalp
COPD
Hypertension
Chronic Hyperventilation. Caused by anxiety or stress
Chronic depression and insomnia
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Oct/14/2017 at 10:18am
I’m having problems with the site so haven’t been able to respond. But I honestly believe that you’ve been shuffled from Dr to Dr and need one healthcare provider for your multiple medical issues and to get your scan results and form a plan for you.

With diabetes a lot of your pain could be from peripheral neuropathy and that can be treated with Lyrica or Gabapentin at the appropriate dosage.

I honestly hope that you can get the help you need and deserve Rocky.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: Oct/15/2017 at 12:24pm
Hi Rocky,

Thanks for explaining what's going on. You've clearly been having a terrible time! You poor thing! At least you are now being investigated. But as Stevie says you need someone to coordinate your treatment and plan what can be done. Surgery these days can achieve amazing results. I am so sorry that life is so tough at the moment. I really hope you will soon get some proper treatment and pain relief. 

While you're being investigated you need pain relief. If Gabapentin doesn't help then Lyrica is a similar but newer drug. Gabapentin didn't help me but Lyrica does. You could ask your doctor if you could change from Gabapentin to Lyrica? As far as I remember that involves gradually coming off the Gabapentin. You would need to follow your doctor's instructions carefully. 

Do you use a cane or walking stick? That may help to prevent your falls. Try to keep as positive as you can and keep us up to date with how things are going. We're here and we're listening.
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Oct/16/2017 at 1:57am
Rocky - can you describe the type of pain at the different locations and the level of pain?  

Like - arms - shooting pain to finger tips - level 5-9/10
Legs - throbbing / stabbing pain - running into lower legs - 5-8/10

I see you have been on the nerve medicine gabapentin at 2700 mg.  I'm taking 600 mg of Lyrica and if I'm more than 4 hours late on my dosage I get the electrical shocks that feel worse than sticking your finger in a 110VAC outlet.  Not as high as the voltage on a CRT or spark plug which would send me flying across the room and leave a burn mark on my finger, but worse than sticking my finger in a light socket.  

Honestly sounds like you need a combination of nerve medicine, opiate, and muscle relaxer like Soma or at least flexeril, but that is why I'm asking questions.

Jeff
Ankylosing spondylitis & osteoporosis -> compression fractures -> facet & ligamentum flavum hypertrophy-> stenosis -> spinal cord & nerve root compression -> cervical myelopathy & radiculopathy -> bruise & deformation of my spinal cord -> incomplete spinal cord injury -> postlaminectomy syndrome of cervical region. Cervical laminectomy & fusion decompressed my cord but I now have severe chronic pain. Pain meds = Oxycontin, Percocet, Lyrica, Soma, Cymbalta, Voltaren Gel, & Ketamine pain cream. 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Oct/17/2017 at 10:36am
Rt arm and finger tips it feels like a high voltage shock well that would probably feel better. On my rt leg the pain is intermittent I will be walking and it feel like someone hit the back of the knee with a cattle prod and down I go. My right arm and hand will not support me. I have no strength on that side. Before I was fused I had pain across the buttock and down the leg. Well it is back with a vengeance.
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: Oct/17/2017 at 11:03am
Rocky,

I think Jeff is better able to advise you than I am. I’m in the UK and don’t know the names of drugs available in the US. Having said that, I find Amitriptyline very effective on my nerve pain. It also helps me to sleep. I take Lyrica in the morning and Amitriptyline in the evening. When I first started taking those drugs I was bowled over by the great pain relief. So I highly recommend both meds. You’re clearly suffering terribly and badly need help. I really hope you get it.
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Oct/17/2017 at 12:32pm
Thank You

2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Oct/18/2017 at 6:29pm
That high voltage shock is a warning sign that your spinal cord is being compressed in the region you describe as C4-C6 and it is called L'hermitte's sign and that sign is usually (not always) an indication that your spinal cord's compression is leading to cord damage.  Especially when combined with arm weakness as you describe.  It's not a medical emergency (yet) but you need to see a neurosurgeon or orthopedic spine surgeon ASAP.  I recommend the neurosurgeon as they more focused training in the cervical region.  I messed around waiting too long and got to where I lost balance and had to use a walker full time to avoid falling over.   My spinal cord had a deep bruise in the center which meant tissue death and necrosis, plus I had bone spurs that squashed the back of my cord which is now permanently deformed and looks like the teeth of a comb.  So trust me, this is nothing to mess around with.  Get an appointment with a neurosurgeon ASAP.  Keep in touch and if you want to send me a private message I'll give you my email address.



Jeff
Ankylosing spondylitis & osteoporosis -> compression fractures -> facet & ligamentum flavum hypertrophy-> stenosis -> spinal cord & nerve root compression -> cervical myelopathy & radiculopathy -> bruise & deformation of my spinal cord -> incomplete spinal cord injury -> postlaminectomy syndrome of cervical region. Cervical laminectomy & fusion decompressed my cord but I now have severe chronic pain. Pain meds = Oxycontin, Percocet, Lyrica, Soma, Cymbalta, Voltaren Gel, & Ketamine pain cream. 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Oct/18/2017 at 6:40pm
Thanks Jeff,  I will next MRI of complete spine Friday afternoon.
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Oct/19/2017 at 2:49am
That's good news Rocky.  I'll help you interpret the results if you like, once you get a copy of the radiologist report (which I would high recommend).  I know I've read that sometimes MRIs can detect such fine details that they overemphasize a problem but that was NOT my outcome.  In fact, my situation proved much worse once they opened me up during fusion surgery.  My neurosurgeon thought my surgery would be 2-3 hours and I was in the OR for 6-7 hours.  Long story to say that don't take the MRI lightly and if it shows even moderate or severe central cord compression and especially if it shows increased signal on the T-2 weighted view then I wouldn't mess around.  They told me only later that I wasn't far from being paralyzed and/or dead based on what they found, and my OR report showed they removed a lot of bone that had my spinal cord griped 360 degrees and compressed to 40% of the normal diameter, but the MRI didn't really look nearly as bad as it turned out.
Ankylosing spondylitis & osteoporosis -> compression fractures -> facet & ligamentum flavum hypertrophy-> stenosis -> spinal cord & nerve root compression -> cervical myelopathy & radiculopathy -> bruise & deformation of my spinal cord -> incomplete spinal cord injury -> postlaminectomy syndrome of cervical region. Cervical laminectomy & fusion decompressed my cord but I now have severe chronic pain. Pain meds = Oxycontin, Percocet, Lyrica, Soma, Cymbalta, Voltaren Gel, & Ketamine pain cream. 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/10/2017 at 6:53pm
Sorry it took so long to get back but here we go.
C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral  changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement
 Patient is status post postierior spinal fusion L4 to S1with pedical screws and vertical rods
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: Nov/11/2017 at 4:27am
Hi Rocky,

I’m so glad that Jeff can help and advise you. I really hope you can soon feel a huge improvement in your condition. I’m not surprised you’ve been at your wits’ end.

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Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Nov/11/2017 at 9:33pm
Thank you for posting the information. I promise to get back ASAP. Having problems with the site and my Mom died yesterday.

Please hang on. We will do all we can to help you Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/12/2017 at 2:20am
Prayers for you and you family Stevie
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Nov/16/2017 at 5:56pm
Rocky there is no question that you need surgery.  I'm most concerned with the cervical for which I would recommend a neurosurgeon over a orthopedic spine surgeon due to the greater training in residency and when I had about the same condition the neurosurgeons were more apt to do something.  Waiting around is not an option.  You don't have an emergency life threatening condition but if you were to have an accident or fall in your current shape it could be catastrophic.  No time to waste.  Find a good neurosurgeon and push all the buttons.  Be your own advocate and if one doesn't want to deal with it find another.  The lumbar stuff also needs to be addressed as well but not as urgently as the cervical.
Ankylosing spondylitis & osteoporosis -> compression fractures -> facet & ligamentum flavum hypertrophy-> stenosis -> spinal cord & nerve root compression -> cervical myelopathy & radiculopathy -> bruise & deformation of my spinal cord -> incomplete spinal cord injury -> postlaminectomy syndrome of cervical region. Cervical laminectomy & fusion decompressed my cord but I now have severe chronic pain. Pain meds = Oxycontin, Percocet, Lyrica, Soma, Cymbalta, Voltaren Gel, & Ketamine pain cream. 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/17/2017 at 12:27am
I agree with the others to get a referral to a Neurosurgeon and even get a second opinion about your C-spine. Ask the Surgeon is your Cspine stable and would you benefit from surgery as you don't want your nerves compressed where you lose all feeling. Only the Dr. will be able to determine the need for surgery as well as a second opinion and the Neurologist EMG test.

I know I have facet joint arthropathy(arthritis) and hypertrophy of all my lumbar discs with herniation at all levels so I get nerve burn(RFA) to my LS spine facet joints every year and it kills the nerves to your LS spine and you get alot of nerve pain relief until the nerve pain gradually grows back. It even helps my leg sciatica as well but to be a candidate they give a steroid injection first to see if you get pain relief. If so RFA is a long term pain relief. This is done by a Pain Management Anesthetist.

Keep on looking for pain relief. Don't give up. Never give in. Sara




DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing Neck-reverse Lordosis of c-spine C6-C7 with impingement, numb hand and sore outer elbow. Bursitis to both knees. RN
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/17/2017 at 7:53am
Thanks Sara1 it took 3 months to get an appointment in a Pain management clinic only to find they only take medicare and I have good insurance through Atena but no just medicare. seems I can not get a break.
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Nov/17/2017 at 10:48am
Rocky—-

I agree you definitely need a couple of consultations with both Neurosurgeons and Orthopedic surgeons. Your issues are complex and obviously you can’t have your entire spine operated on. I’d want two or more opinions and good neurological exams done and then make a decision.

I’m so sorry about the insurance issues—-I don’t know your age, but when you are eligible for Medicare, make sure to get a Supplement to cover the 20% Medicare doesn’t. Saved me many thousands of dollars when I had my last lumbar fusion.

Please keep us posted. I’m sure you are at your wits end—hang in there. We can say that because we truly understand and we never give up. Persistence pays off!!

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocky1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/17/2017 at 12:27pm
I am only 56 but I am a retired Law Enforcement with insurance for life. I have had the EMB studies and the Dr. said I got problems. I looked like a pin cushion leaking when he was done arms, legs, back, hands, feet he covered me good.  The new neurosurgeon's office I am going to now I found out I am the lunch room discussion among the group of Dr.s. They keep moving up my Dr.s appointment with every cancellation. My Original surgeon has since retired.
  
2/13/08 two lvl fusion L-4 to S-1 w/Axilif and all the hardware to prove it.I now have severe chronic pain.
Down and out 16 weeks.But with the help of my spiney friends I am moving on with life. Left and right rotator cuff 2012 torn meniscus 2013
Another tear same knee, Now torn meniscus both knees 11/2013 As of 11/10 17 C3-C4 C6-C7 Posterior disc osteophyte complex with moderate central spinal stenosis and impingement on the anterior cervical spinal cord. there are uncovertebral changes and facet joint arthropathy with bilateral neural formina narrowning and mass effect on exiting right and left C4 and C7 nerve root
T12-L1right para-central disc protrusion abuts the the-cal sac
L1-l2 disc bulge abuts the the-cal sac. mild facet
L2-L3 spinal canal stenosis secondary to disc bulge and bilateral facet hypertrophy
L3-L4disc protrusion spinal canal stenosis disc spacers partially extend into the right extra-formation region and abuts the right L4 nerve root in the extra-formation region
L5- S1Disc bulge abuts the thecal sac bilateral facet hypertrophy The L5 nerve root exits with mild impingement.
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