Advertise
With Us 
ChronicPainSite.com Foundation, Inc Personal Homepage
Please, if you have not Donated lately we need your help.
Click here to find out how YOU can help
  Advertise
With Us 
 
  FAQ FAQ   Forum Search   Register Register  Login Login

To Our FB page      
      
Login
Register
---------
ChronicPainSite.com Foundation, Inc
RULES
Navigation
Main Page
Forum Home
About Us
Site Information
Our Advisors
Articles Home
Faces of Pain
Recipe Section
No Pain Pain Scale No Pain


FAQ
Member Control Panel
Login
Register
Walking Conversion Chart

DC's Stories

CP Man Stories
 
Donate

Reducing or Stopping Opioids

 Post Reply Post Reply
Author
Bailey View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2018

Joined: Oct/22/2010
Location: Canada
Posts: 10466
Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Topic: Reducing or Stopping Opioids
    Posted: Apr/04/2018 at 4:58pm
Hi Dick,

I’m really sorry that you’re even considering stopping/reducing your meds. I know how difficult finding some QOL is when dealing with the kind of pain you have. And how anything that provides even a little relief from that pain is worth a million bucks. But I also understand the pressures and stigma anyone on opioids is being forced to deal with.

I was able to stop the oxy I was taking over approx 6 months. I made the decision and told my doc I wanted to decrease my doseage. I asked for my script to change from 1-30mg tablet, 3 times a day, to 3-10mg tablets. That allowed me to stop taking 10 mg at a time. Once I had been at a reduced doseage for a month, I would ask him to reduce the script. That allowed me to always feel in control of the amount and speed I was reducing.

I did the same thing with the IR Oxy. I was allowed 15mg, 3 times a day. I decreased the dose by 5mg at a time as I was able.

I think that patches are probably harder to come off of because they only come in a couple of strengths. Reducing as slowly as I did, I suffered very few side effects or withdrawals. Getting rid of the last doses was the hardest, but still nothing like what I had feared and expected. I don’t know if switching to a different pain med first might make it a little bit easier. I know my gp offered me suboxone when I told him what I was planning. I’m not sure if that could help or not.


I’ll also note that I did this as the war against opioids was in it’s infancy. My pain specialist never asked me to decrease and assured me if I needed my prescription changed back to the higher doseage, he would have no problem doing so. I don’t know if you can get that promise now.


DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
Back to Top
dbarbeau48 View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2016

Joined: Aug/19/2008
Location: Massachusetts
Posts: 2390
Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 4:36pm
Some good news and some bad news on the medication front. Bad first. I decided to cut back that Oxycodone that’s killing my stomach. I went from 4 pills a day to 3 then 2 and 1 yesterday. I was in total pain agony, not withdrawal pain, it was joint and back pain. I couldn’t take care of my wife. So I was faced with the choice of stomach discomfort or total body pain. So I’m back on the med. I made sure to eat with each pill and took only 3 for the day.
The good news. CVS pharmacy does not sell the bad Oxycodone. They told me they stopped using that company after many complaints. So, I have to tough it out for another week and I will get my pain script filled at CVS. I’m hoping to stay at 3 pills a day for the time being but after the pain I experienced I doubt I’ll ever be pain free.
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
Back to Top
Jeff View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2014-2018

Joined: Aug/22/2013
Location: United States
Posts: 1094
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 7:40pm
I always challenge myself but if I push too hard the pain gets to the point where the medicine can't help.  I had zero problems dropping pain meds years ago when the problem causing my pain went away, but now I'm just worn out all over my body and there is no solution short of death for me.  Our state will be the last to allow medical marijuana, but I have to question its efficacy in true pain, because if memory serves its more of a hallucinogen than a pain medication.  But I wouldn't question anyone who has tried it and it works.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
Back to Top
Bailey View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2018

Joined: Oct/22/2010
Location: Canada
Posts: 10466
Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 8:00pm
Hi Dick,

With your back, and hips and knees, I don’t think you’ll ever be pain free either. I’m sorry you’re dealing with crappy meds on top of the constant pain. At least that will improve in a week, fingers crossed CVS keeps stocking the good oxy.

Dick, when I reduced my meds I did it very slowly. One pill, 5 mg IR or 10mg CR, at a time. I’d stay at that dose for at least a week, sometimes longer, before reducing again. I took months to reduce then stop the oxy. And I was able to replace it with canna-capsules, tinctures, edibles, and the topicals that work amazing for me.

Your body has endured massive trauma through numerous operations. You need and deserve good pain control. If the oxycodone works, it should be available to you. Without stigma, or fear, or constant worry about it being taken away.

Trying to stop as quickly as both you and Stevie did, is crazy. Though in your case right now it’s the lesser of two evils. I hope you can keep the body pain and belly pain under control until you can get the better pills.

And I’m so sorry all of us who’ve followed all the rules, are being forced to deal with a crisis not of our making.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
Back to Top
Bailey View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2018

Joined: Oct/22/2010
Location: Canada
Posts: 10466
Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 8:04pm
Jeff,

Instead of relying on your memory, look into a little education on cannabis. Do you know anything about our endocannabinoid system and what medical conditions are associated with it’s dysfunction?

I’m also curious about your definition of “true” pain.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
Back to Top
Stevie View Drop Down
Admin Group
Admin Group
Avatar
I Donated to CPS

Joined: Jun/01/2008
Location: Arizona
Posts: 27219
Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Apr/07/2018 at 10:37am
While anyone who is on high doses of opioids, and especially the long acting variety, should wean off slowly, I didn’t find it difficult to get off several doses of immediate acting Oxycodone. At least not until the last pill which is when I felt really bad for at least a week. But, for me it was important to accomplish this and to come up with a plan that I could live with long term. That’s where getting back on a low dose of Gabapentin and using MMJ have helped—-me. My pain levels are honestly less now. I feel that I was experiencing rebound pain as doses of the Oxy wore off.

Dick—-if I had to be a caregiver as you are, I’m unsure how it would be possible as I had to have those few weeks to concentrate on my own needs. I’m glad that you can switch over to CVS. I have used them always and they never have switched the manufacturer. My problem with them when I got my last (and final) prescription filled was that they didn’t have enough stock on hand and it was going to take a week to get it. That’s the first time I’ve run into that and it was really the deciding factor in my decision.

Jeff—I agree with Bailey about education regarding Cannabis. I have found many ways to use this effectively for pain relief without having to have any psychoactive effects. In fact, I’ve had far worse side effects from many of the drugs thrown at me over the years. We need more research into the effects of this drug on chronic pain, and in fact I received an email about clinical trials being done, but none were available in my town. I’m going to be on the lookout now as I’d love to participate in this. The fact is that we have receptors throughout our bodies that respond to Cannabis and it’s currently believed in many circles to be a possible way to get those addicted to opioids off.

Here’s the bottom line—-there is no panacea out there for those of us living with CP.   I know that I will always have pain and have never changed my belief that what works for one person is going to work for another. Treatments will always involve a multidimensional approach including dietary changes, exercise of some sort, therapies and massage or acupuncture or anything that works.

The most important take away is to be able to get what is needed to have a decent quality of life. In my case, the opioids and problematic times surrounding their use pushed me to get off and in my case I’m no worse off.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
Back to Top
Jeff View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2014-2018

Joined: Aug/22/2013
Location: United States
Posts: 1094
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Apr/08/2018 at 7:44pm
True pain - I meant to say acute pain - like post op pain from a hip replacement, the especially brutal pain, or pain from a freshly broken bone, or childbirth.

I've been looking into studies and I see some but would like any links.  Its like I said not an option for me at this time.  Our state doesn't allow marijuana for medical or recreational use, nor is it any adjacent state.

Do you who take it start the day with it, or only take it as you need it?  I have to take medicine to even get out of bed.  Today I woke up at 2:30 PM, took my Oxycontin, then finally at 4:30 PM I got the pain down enough to reach for my Percocet, then 30 minutes later at 5 PM I was able to get out of my zero gravity chair, so I missed the most of the Masters.  I had to sit there dying to see the Masters PGA golf tournament but was unable to move enough to reach the remote control.  Most days are like this.  I wake up in 7/10 pain and can't move until I get it to 5.5/10 and then can't really function until I get it below 5/10 adn that can take 2-3 hours.  It stinks but what can you do.

I'm very interested in double blind tests of medical marijuana for pain vs. placebo vs. opiates, so that the person taking the medicine has no idea what they are taking.  To me, that is the real test of the efficacy of a medicine.  If in a large clinical trial of 500 people or so the statistics show that MMJ works as well as opiates, I'll be all for it.

Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
Back to Top
Bailey View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2018

Joined: Oct/22/2010
Location: Canada
Posts: 10466
Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/11/2018 at 6:28am
Well, speaking from recent experience, my best friend just had her second total hip replacement and once out of hospital used only cannabis and OTC Tylenol for pain control. I helped her make extra strength capsules, suppositories and topical lotions in preparation for her surgery and ensured she had lots on hand.

Her doctors encouraged her and are amazed at how well and quickly she has healed. She believes it works on true, acute, pain.

Regardless of whether your state ever allows cannabis, there are many people who could benefit from a plant that has been used for centuries and never killed anyone. Our endocannabinoid system exists to maintain homeostasis within the body. I’m sorry for those who may never see the benefits this plant offers. People are having amazing results treating epilepsy, Crohn’s, Parkinson’s and more.

I’d love to see those studies too, unfortunately the US govt started reefer madness and made a plant that has been used as medicine for centuries, a Schedule 1 drug. That makes it next to impossible to procure the materials and funding for any research. Especially when the pharma companies, who fund most studies, can’t make the billions of dollars they do selling oxy and fentynl.

But the studies and research are happening. Israel is light years ahead in cannabis research. You have lots of experience doing research, you’ve offered your skills to members before, look into your endocannabinoid system. You won’t find the kind of study that you’d like to see, but there is a growing body of data available to anyone who is interested.

You might also want to look into the same kind of studies done on oxy. And the hundreds of millions it’s manufacturers have paid out in fines for lying about the efficacy, addictive potential and length of time their extended formula actually provided pain relief.

I take a capsule of EVOO infused with concentrated cannabis oil(basically cannabis essential oil) I make myself, twice a day. I use a 20/1 ratio of carrier to cannabis oil. The 00 capsules I fill hold .8ml. I make daytime and nighttime capsules. The night ones also give me a great sleep. I lather myself up with a strongly infused topical lotion, several times a day. I make and use edibles as needed. And I use a sublingual tincture or vaporizer when needed as an IR med.

This works for me.

Your body is in terrible condition from disease processes and numerous surgeries. You need pain meds and will for the rest of your life. Nobody is suggesting cannabis will take away your pain. Nobody is asking you to try it. And nobody is asking you to be all for it.

I hate what this war on opioids is doing to chronic pain patients everywhere. We need options. And as I’ve said in most posts on this topic, while it can’t help, everyone, Cannabis can be an option for some. And as I’ve also said many times, unlike oxy and fentynl, nobody dies from cannabis.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
Back to Top
Stevie View Drop Down
Admin Group
Admin Group
Avatar
I Donated to CPS

Joined: Jun/01/2008
Location: Arizona
Posts: 27219
Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Apr/12/2018 at 12:22am
Jeff—

Bailey just wrote the best post about Cannabis I have ever read. I have nothing to add that could help.

Today it was announced that former speaker of the House, Boehmer, who was vehemently opposed to marijuana in any form has joined the board of a large marijuana growing company. He has turned his thinking around 360 degrees. He feels, as many do, that this plant can help our Veterans with PTSD, CP patients and get addicts off opioids. So the worm has turned.

You mentioned double blind studies. Well, having been a PA involved with running one of those, with a very large and well known Pharma, I can tell you how flawed these studies can be. I will go with the testimonials from thousands who have found relief and far more safely than with opioids.

I too used to wake in the middle of the night in pain and early morning when getting out of bed was impossible without taking an Oxycodone. No longer. Sure—-I still have pain, but I’m able to control it by dosing with edibles and tinctures. I use little during the day——Gabapentin and Baclofen now are my go “to’s”. Yes, there are times that I really hurt because we are in the process of renovating and moving to a new house. I have to rest when it’s bad. But, I no longer pop a pain pill and I don’t miss it at all. I’ve been opioid free for close to three weeks now, and my family says that I smile more these days even when I’m not feeling great.

So, I want people to become educated about ways to get off opioids if that is their choice. That’s all we’re doing now. Offering alternatives.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
Back to Top
dbarbeau48 View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2016

Joined: Aug/19/2008
Location: Massachusetts
Posts: 2390
Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/13/2018 at 9:44am
Bailey, that was a great post. It helped me understand life without opioids.
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
Back to Top
Bailey View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2013-2018

Joined: Oct/22/2010
Location: Canada
Posts: 10466
Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/13/2018 at 10:35am
Thanks Dick.

One thing about living without the pills, it’s more work. It was easier to take a pill so many times a day compared to making lotions and infusing oils to make capsules and other medicines. But having the control over my own meds and knowing exactly what goes into everything, is well worth it and incredibly satisfying.

Not having to worry about changing rules, crappy generic substitutions, shortages, stigma or what comes next in the Opioid crisis, is priceless.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
Back to Top
Jeff View Drop Down
CPS Support
CPS Support
Avatar
I Donated to CPS 2014-2018

Joined: Aug/22/2013
Location: United States
Posts: 1094
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Apr/15/2018 at 4:15am
I fully support any and all research into defeating the true enemy - pain itself.  If MMJ works, I think we should pour a lot more R&D into it.  Look at the lives lost to heroin and other opiate street uses.  I just don't want to lose access to our opiates until we have proven options that work for all patients.  We still need opiates, though I concur it should be regulated as it has been and not pushed on doctors to sell more.  But at the same time, the government has a tendency to go too far and beyond any point of reason in seeking what is popular for political gain, rather than what is best for the needs of the chronically ill.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
Back to Top
 Post Reply Post Reply

Forum Jump Forum Permissions View Drop Down


Go To Top of Page
Angry CPS Members list of 65 worst things people say to us about Chronic Pain Angry
Big smilePositive Pointers for Those In Pain from our ChronicPainSite membersBig smile

 



This site complies with the HONcode standard for trustworthy health information: - verify here. This website is certified by Health On the Net Foundation. Click to verify.
  Terms of Use  -  Privacy Statement  -  Site Information
Dedicated to providing guidance in the comprehension and management of chronic pain.
We believe that the well-informed person has the ability to take charge of their pain
 rather than having pain take charge of them.
At this time funding is provided by ChronicPainSite.com Foundation, Inc.
A 501(c)(3) nonprofit corporation
Also by public and private donations

Our site does display banner/link exchanges in the form of unrestricted grant funding
CPS maintains a clear separation between editorial content and sponsorship/advertising. Advertisers messages are clearly identified,
 and advertisers links lead to sites that are not owned or controlled by CPS.
 CPS reserves the right to remove advertisers that do not comply with our standard


This site had been accessed a combined total of 16,341,279 times in 2011 to 2012
This site has been accessed 10,880,421 times in 2013
This site has been accessed 11,533,431 times in 2014
This site has been accessed 13,338,417 times in 2015
This site has been accessed 15,241,338 times in 2016
This site has been accessed 12,529,872 times in 2017

This site has been accessed 5,579,900 times in 2018