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Reducing or Stopping Opioids

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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Topic: Reducing or Stopping Opioids
    Posted: Apr/04/2018 at 4:58pm
Hi Dick,

I’m really sorry that you’re even considering stopping/reducing your meds. I know how difficult finding some QOL is when dealing with the kind of pain you have. And how anything that provides even a little relief from that pain is worth a million bucks. But I also understand the pressures and stigma anyone on opioids is being forced to deal with.

I was able to stop the oxy I was taking over approx 6 months. I made the decision and told my doc I wanted to decrease my doseage. I asked for my script to change from 1-30mg tablet, 3 times a day, to 3-10mg tablets. That allowed me to stop taking 10 mg at a time. Once I had been at a reduced doseage for a month, I would ask him to reduce the script. That allowed me to always feel in control of the amount and speed I was reducing.

I did the same thing with the IR Oxy. I was allowed 15mg, 3 times a day. I decreased the dose by 5mg at a time as I was able.

I think that patches are probably harder to come off of because they only come in a couple of strengths. Reducing as slowly as I did, I suffered very few side effects or withdrawals. Getting rid of the last doses was the hardest, but still nothing like what I had feared and expected. I don’t know if switching to a different pain med first might make it a little bit easier. I know my gp offered me suboxone when I told him what I was planning. I’m not sure if that could help or not.


I’ll also note that I did this as the war against opioids was in it’s infancy. My pain specialist never asked me to decrease and assured me if I needed my prescription changed back to the higher doseage, he would have no problem doing so. I don’t know if you can get that promise now.


DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 4:36pm
Some good news and some bad news on the medication front. Bad first. I decided to cut back that Oxycodone that’s killing my stomach. I went from 4 pills a day to 3 then 2 and 1 yesterday. I was in total pain agony, not withdrawal pain, it was joint and back pain. I couldn’t take care of my wife. So I was faced with the choice of stomach discomfort or total body pain. So I’m back on the med. I made sure to eat with each pill and took only 3 for the day.
The good news. CVS pharmacy does not sell the bad Oxycodone. They told me they stopped using that company after many complaints. So, I have to tough it out for another week and I will get my pain script filled at CVS. I’m hoping to stay at 3 pills a day for the time being but after the pain I experienced I doubt I’ll ever be pain free.
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 7:40pm
I always challenge myself but if I push too hard the pain gets to the point where the medicine can't help.  I had zero problems dropping pain meds years ago when the problem causing my pain went away, but now I'm just worn out all over my body and there is no solution short of death for me.  Our state will be the last to allow medical marijuana, but I have to question its efficacy in true pain, because if memory serves its more of a hallucinogen than a pain medication.  But I wouldn't question anyone who has tried it and it works.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 8:00pm
Hi Dick,

With your back, and hips and knees, I don’t think you’ll ever be pain free either. I’m sorry you’re dealing with crappy meds on top of the constant pain. At least that will improve in a week, fingers crossed CVS keeps stocking the good oxy.

Dick, when I reduced my meds I did it very slowly. One pill, 5 mg IR or 10mg CR, at a time. I’d stay at that dose for at least a week, sometimes longer, before reducing again. I took months to reduce then stop the oxy. And I was able to replace it with canna-capsules, tinctures, edibles, and the topicals that work amazing for me.

Your body has endured massive trauma through numerous operations. You need and deserve good pain control. If the oxycodone works, it should be available to you. Without stigma, or fear, or constant worry about it being taken away.

Trying to stop as quickly as both you and Stevie did, is crazy. Though in your case right now it’s the lesser of two evils. I hope you can keep the body pain and belly pain under control until you can get the better pills.

And I’m so sorry all of us who’ve followed all the rules, are being forced to deal with a crisis not of our making.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/06/2018 at 8:04pm
Jeff,

Instead of relying on your memory, look into a little education on cannabis. Do you know anything about our endocannabinoid system and what medical conditions are associated with it’s dysfunction?

I’m also curious about your definition of “true” pain.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Apr/07/2018 at 10:37am
While anyone who is on high doses of opioids, and especially the long acting variety, should wean off slowly, I didn’t find it difficult to get off several doses of immediate acting Oxycodone. At least not until the last pill which is when I felt really bad for at least a week. But, for me it was important to accomplish this and to come up with a plan that I could live with long term. That’s where getting back on a low dose of Gabapentin and using MMJ have helped—-me. My pain levels are honestly less now. I feel that I was experiencing rebound pain as doses of the Oxy wore off.

Dick—-if I had to be a caregiver as you are, I’m unsure how it would be possible as I had to have those few weeks to concentrate on my own needs. I’m glad that you can switch over to CVS. I have used them always and they never have switched the manufacturer. My problem with them when I got my last (and final) prescription filled was that they didn’t have enough stock on hand and it was going to take a week to get it. That’s the first time I’ve run into that and it was really the deciding factor in my decision.

Jeff—I agree with Bailey about education regarding Cannabis. I have found many ways to use this effectively for pain relief without having to have any psychoactive effects. In fact, I’ve had far worse side effects from many of the drugs thrown at me over the years. We need more research into the effects of this drug on chronic pain, and in fact I received an email about clinical trials being done, but none were available in my town. I’m going to be on the lookout now as I’d love to participate in this. The fact is that we have receptors throughout our bodies that respond to Cannabis and it’s currently believed in many circles to be a possible way to get those addicted to opioids off.

Here’s the bottom line—-there is no panacea out there for those of us living with CP.   I know that I will always have pain and have never changed my belief that what works for one person is going to work for another. Treatments will always involve a multidimensional approach including dietary changes, exercise of some sort, therapies and massage or acupuncture or anything that works.

The most important take away is to be able to get what is needed to have a decent quality of life. In my case, the opioids and problematic times surrounding their use pushed me to get off and in my case I’m no worse off.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Apr/08/2018 at 7:44pm
True pain - I meant to say acute pain - like post op pain from a hip replacement, the especially brutal pain, or pain from a freshly broken bone, or childbirth.

I've been looking into studies and I see some but would like any links.  Its like I said not an option for me at this time.  Our state doesn't allow marijuana for medical or recreational use, nor is it any adjacent state.

Do you who take it start the day with it, or only take it as you need it?  I have to take medicine to even get out of bed.  Today I woke up at 2:30 PM, took my Oxycontin, then finally at 4:30 PM I got the pain down enough to reach for my Percocet, then 30 minutes later at 5 PM I was able to get out of my zero gravity chair, so I missed the most of the Masters.  I had to sit there dying to see the Masters PGA golf tournament but was unable to move enough to reach the remote control.  Most days are like this.  I wake up in 7/10 pain and can't move until I get it to 5.5/10 and then can't really function until I get it below 5/10 adn that can take 2-3 hours.  It stinks but what can you do.

I'm very interested in double blind tests of medical marijuana for pain vs. placebo vs. opiates, so that the person taking the medicine has no idea what they are taking.  To me, that is the real test of the efficacy of a medicine.  If in a large clinical trial of 500 people or so the statistics show that MMJ works as well as opiates, I'll be all for it.

Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/11/2018 at 6:28am
Well, speaking from recent experience, my best friend just had her second total hip replacement and once out of hospital used only cannabis and OTC Tylenol for pain control. I helped her make extra strength capsules, suppositories and topical lotions in preparation for her surgery and ensured she had lots on hand.

Her doctors encouraged her and are amazed at how well and quickly she has healed. She believes it works on true, acute, pain.

Regardless of whether your state ever allows cannabis, there are many people who could benefit from a plant that has been used for centuries and never killed anyone. Our endocannabinoid system exists to maintain homeostasis within the body. I’m sorry for those who may never see the benefits this plant offers. People are having amazing results treating epilepsy, Crohn’s, Parkinson’s and more.

I’d love to see those studies too, unfortunately the US govt started reefer madness and made a plant that has been used as medicine for centuries, a Schedule 1 drug. That makes it next to impossible to procure the materials and funding for any research. Especially when the pharma companies, who fund most studies, can’t make the billions of dollars they do selling oxy and fentynl.

But the studies and research are happening. Israel is light years ahead in cannabis research. You have lots of experience doing research, you’ve offered your skills to members before, look into your endocannabinoid system. You won’t find the kind of study that you’d like to see, but there is a growing body of data available to anyone who is interested.

You might also want to look into the same kind of studies done on oxy. And the hundreds of millions it’s manufacturers have paid out in fines for lying about the efficacy, addictive potential and length of time their extended formula actually provided pain relief.

I take a capsule of EVOO infused with concentrated cannabis oil(basically cannabis essential oil) I make myself, twice a day. I use a 20/1 ratio of carrier to cannabis oil. The 00 capsules I fill hold .8ml. I make daytime and nighttime capsules. The night ones also give me a great sleep. I lather myself up with a strongly infused topical lotion, several times a day. I make and use edibles as needed. And I use a sublingual tincture or vaporizer when needed as an IR med.

This works for me.

Your body is in terrible condition from disease processes and numerous surgeries. You need pain meds and will for the rest of your life. Nobody is suggesting cannabis will take away your pain. Nobody is asking you to try it. And nobody is asking you to be all for it.

I hate what this war on opioids is doing to chronic pain patients everywhere. We need options. And as I’ve said in most posts on this topic, while it can’t help, everyone, Cannabis can be an option for some. And as I’ve also said many times, unlike oxy and fentynl, nobody dies from cannabis.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Apr/12/2018 at 12:22am
Jeff—

Bailey just wrote the best post about Cannabis I have ever read. I have nothing to add that could help.

Today it was announced that former speaker of the House, Boehmer, who was vehemently opposed to marijuana in any form has joined the board of a large marijuana growing company. He has turned his thinking around 360 degrees. He feels, as many do, that this plant can help our Veterans with PTSD, CP patients and get addicts off opioids. So the worm has turned.

You mentioned double blind studies. Well, having been a PA involved with running one of those, with a very large and well known Pharma, I can tell you how flawed these studies can be. I will go with the testimonials from thousands who have found relief and far more safely than with opioids.

I too used to wake in the middle of the night in pain and early morning when getting out of bed was impossible without taking an Oxycodone. No longer. Sure—-I still have pain, but I’m able to control it by dosing with edibles and tinctures. I use little during the day——Gabapentin and Baclofen now are my go “to’s”. Yes, there are times that I really hurt because we are in the process of renovating and moving to a new house. I have to rest when it’s bad. But, I no longer pop a pain pill and I don’t miss it at all. I’ve been opioid free for close to three weeks now, and my family says that I smile more these days even when I’m not feeling great.

So, I want people to become educated about ways to get off opioids if that is their choice. That’s all we’re doing now. Offering alternatives.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/13/2018 at 9:44am
Bailey, that was a great post. It helped me understand life without opioids.
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Apr/13/2018 at 10:35am
Thanks Dick.

One thing about living without the pills, it’s more work. It was easier to take a pill so many times a day compared to making lotions and infusing oils to make capsules and other medicines. But having the control over my own meds and knowing exactly what goes into everything, is well worth it and incredibly satisfying.

Not having to worry about changing rules, crappy generic substitutions, shortages, stigma or what comes next in the Opioid crisis, is priceless.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Apr/15/2018 at 4:15am
I fully support any and all research into defeating the true enemy - pain itself.  If MMJ works, I think we should pour a lot more R&D into it.  Look at the lives lost to heroin and other opiate street uses.  I just don't want to lose access to our opiates until we have proven options that work for all patients.  We still need opiates, though I concur it should be regulated as it has been and not pushed on doctors to sell more.  But at the same time, the government has a tendency to go too far and beyond any point of reason in seeking what is popular for political gain, rather than what is best for the needs of the chronically ill.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: May/23/2018 at 12:21pm
I'm going to ask my Dr. for another referral to MMJ clinic again in June. I tried MMJ but unable to tolerate vaping as I got a sore throat all the time even trying 2 vape machines. So I want to try the CBD oil now. I have leftover jars of MMJ leaves and maybe make some tea.LOL

I'm still on Fentanyl patch and I'm doing another Back physiotherapy group at the pain clinic at the hospital every week and I can barely move, I'm so stiff. Had to cancel my eye Dr. appt. today as I can't get out of bed. 

I honestly think I need a rehab hospital the car rides are outrageous and long and can barely get out of the car. So would like to try CBD again to see if it can get me off the meds as they only help the pain but the energy levels are low because Fentanyl is so sedating and think I need an increase again same as last year right before nerve burn.

I need to try this as I don't think I can do this anymore. I'm on Wellbutrin 300 xl daily. I'm going to start CBT group although can't see how it can help. So next up is CBD since it seems to be helping you guys so much. I hope my insurance is accepting it now have to call them.
Thanks for sharing Bailey and Stevie how MMJ is reducing or eliminating your need for pain pills. Have to wait for the Dr. appointment as I have to get another referral to MMJ clinic as I've been inactive since 2015. Sara
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: May/23/2018 at 4:22pm
Hi Sara,

I hope that I haven’t given any type of false hope regarding how MMJ is helping me. I definitely still have pain, but I’m resigned to it as to be honest I had more pain on the Oxycodone. I feel that I was experiencing rebound pain from the opioids——as the pill wore off the pain was worse, so I took another pill and it became a vicious cycle.

I depend upon Gabapentin 300mg and Baclofen 3 times a day. I wish that MMJ was covered by insurance but no idea when if ever that will happen. It’s very expensive—-so I’m limited in how much I can buy/afford. I’m not permitted to cultivate it as in my State I live within 25 miles of dispensaries. I have seasonal asthma and can’t smoke it at all. I’m able to vape on a very limited basis and only a few puffs. I’m a huge fan of CBD due to its non psychoactive effects. I’m a huge fan of edibles—especially at night as Indica allows for a great sleep. I also use tinctures which are rapidly absorbed and effective.

I think that Bailey will agree with me that it’s much more difficult to stay on top of the pain using Cannabis as I often forget to use it until I’m in a lot of pain. At those times I realize how much easier it was to simply swallow a pill, but to be free of the lousy BS we have had to endure due to this so called opioid crisis not caused by any of us true CP patients, makes my life easier.

I wish you well with whatever you decide. It could well be that by adding some MMJ into your routine you will be able to use less opioids. I had my license for 2 years before I made the decision to quit narcotics and I don’t regret my decision. But—-again, pain is with me all of the time. I just feel that I can manage it better now.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: May/24/2018 at 5:42pm
Yes Stevie it's too bad its not covered by insurance yet. Maybe they will get a patch just like Fentanyl patch is being slowly released throughout the day. I can't understand how broad based disc herniation wouldn't be concerning I think I'll ask Dr. for a referral to Orthosurgeon but seems if there's no or little sciatica I have they don't seem to care about the back pain. I've tried no exercise. I've tried Physiotherapy and walking and no relief. How can one live in constant pain?

Anyway no that other post I did before wasn't written the way I wanted I guess. I don't know about that pain pills make the pain worse or just letting you know you're in pain. Who can understand it all. Have you tried a low dose patch yet? I know it's difficult to go to aquatherapy I'm so concerned about the patch releasing too quickly.

But I hope it's just you're healing from your surgery so know once you get surgery your movements can be limited. Hard to know whether physio makes it better but I'm doing it every week in a special class. I was considering the Cognitive Behavior group but it's sitting for 2'5 hours sitting an hour each way to get there. Don't know if I can take that.

So will try the MMJ oil and edibles a small amount monthly and see if I can come down. But right now I'll be soon getting RFA again for the 4th time to l2/3-s1/2 again. It only lasts a year for this for facet joint nerve pain. It's a great relief for the first few months though if anyone hasn't tried this yet talk to your Dr. and get into a Pain Management Program at a hospital where they do live x-ray nerve burn(RFA) 

Don't give up anyone. I think I have to look in the mirror when I say this. Take care. Sara
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: May/25/2018 at 10:18am
Sara—-

There is a MMJ patch available but I didn’t have any success with it. Not for widespread back pain. I’m thinking that it may help a more localized area.

My pain is a combination of low back pain from prior surgeries which I can handle. But the worst pain is my entire thoracic spine which has scoliosis made worse as my entire lumbar spine is fused. Also, severe cervical arthritis.

I agree with you that we just need to keep trying anything and everything that may help and not hurt. Living in pain 24/7 is exhausting physically and emotionally.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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codeine 8mg was sold over the counter and it was either with Acetaminophen or with Ibuprofen. It was a gentle relieving pain med for my husband's hardly ever knee pain. Now I see it was removed in January 2018. They say it wasn't really effective and it was being abused. I had no  idea it was removed until now. I guess I don't listen to the news much.

DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: May/31/2018 at 9:27am
I’m not surprised Sara, but disappointed. It WAS a safe and effective pain medication and hardly addictive at only 8mg of codeine per pill. People who are abusing it have to be taking so much of it for a “high” they are causing severe liver damage from the amount of acetaminophen they are ingesting. I used to buy it when I was in Canada as something to take on occasion rather than a stronger opioid.

Do you know if this is Country wide or limited to certain Provinces? It’s beyond frustrating to continue to hear these stories of what addicts will do and take to get high. I’m wondering what will be left for us to use for pain—-I’m depending upon Gabapentin at a low dose 3times a day to try to get through the day and now understand that it’s being abused because it’s cheap. What’s next?

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: May/31/2018 at 9:46am
I only saw on Google the news and didn't really check Health Canada website. It was only last year I got the tylenol 1s at the drugstore. I had no idea they got rid of it. 
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Jun/03/2018 at 8:26pm
Beyond the US and Canada, if I am willing and able to emigrate out of the US, is there another country that doesn't plan to rob legit pain patients of opiate medicine like the US is doing?  I'm ready to get out of here.  Its nuts to stay.

The other option is a class action lawsuit against the DEA, CDC, and FDA to get an injunction against these on the basis of human rights and freedom from torture per the Geneva convention of the United Nations.  Any ideas for fundraising for legal fees that might total $400,000?  If each chronic pain patient donated $1 each and we only reached 10% of those in chronic pain we would have enough.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Jun/03/2018 at 8:36pm
I looked into Kratom and it is illegal all around me in Alabama as is medical or recreational marijuana.  My pain doc even told me that if I went to Colorado (several thousand miles away) that I could pick only one:  Opioids or MMJ, not both.  So my options seem VERY POOR other than fight the federal government head on or find another country that hasn't gone totally nuts over opioids and I'm looking at Portugal, Germany, Phillipines, Columbia, Nicaragua, and Mexico.  Anyone know where there is a small to large size group of US citizens in an area with legal opioids that are not doing stupid crap like imposing a one size fits all 90 MME regardless of your metabolism of opiates, regardless of what is wrong with you, regardless of how long you have been on opiates???
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Well' I don't now about the 90mg a day as I'm taking 50mcg/hr of Fentanyl patch and it's way more than 90mg of Oxycodone. Maybe you can see about a change of meds. If I were you I would get with a Pain Management Center in a Hospital not just your Surgeon. My Family Dr. has the Pain Dr back my Dr up on any prescription for intractable pain that I have. In fact I take less than what he recommends.

Those are only guidelines and don't think they're written in stone but I'm not the Dr. I know it's hard to think of it but these rules are for those who have OD because of lack of knowledge of pain meds or mixing meds and alcohol. I think a Pain Management Dr. should be in charge of backing up your Family Dr.

DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Jun/05/2018 at 11:06pm
Oh no it isn't 90 mg of oxycodone its 90 MME.  Apparently the DEA is bullying all pain docs in the US into either converting everyone to suboxone or below 90 MME.  That is equal to 60 mg of oxycodone MAX per day.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Jul/30/2018 at 3:57pm
Its been awhile so I thought I'd update you all on my quest to end opioids. I am back down to one Oxycodone a day, taking it mid afternoon. Pain? Yes! But I got use to it. Now the big problem is the 50 mg fentanyl patch. The withdrawal is awful. I don't think it was helping me with pain relief but boy has it made my life hell trying to get off it. I'm now cutting the patch in half and going the 72 hours on it that way. I'm managing all right the first 48 hours but that last 24 hours is tough. So I'll keep at this level for another month or so until I can get off the patch. I'm hoping to be off all opioids by November. I'm still using my CBD oil and capsules and that is helping. 
Part of the reason I'm hellbent on doing this is because my trusted, understanding doctor has left the practice. My new doctor, who is my wife's PC doctor, is not so understanding when it comes to pain relief. I don't want to be left hanging when I have my physical in November. 
Dick
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
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Wow, that’s impressive Dick. I’m sorry you’re dealing with this, but glad the CBD is helping you. Good luck. I hate that you have to worry about your doctor when you have lots of pain and have followed all the rules, but that’s today’s reality. Is your pharmacist helping you at all? Mine was great when I weaned off the oxy. In fact we talked so much about cannabis he’s now gotten his medical license for his own issues and is about to start growing and using cannabis himself.

DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jul/31/2018 at 9:28am
It’s no easy feat doing this, Dick. Take it slow and easy and you’ll get there. I do hope you are on Gabapentin or Lyrica and a muscle relaxant. Between the anticonvulsant for the nerve pain and muscle relaxant and my MMJ edibles and CBD vaping I also made it off all opioids. Honestly there was no difference in pain using the above meds and the relief of having no further worries about getting the opioids was overwhelming. I too am looking at my Internist of 24 years retiring and I am not going to be forced into some PM group.

Now I’ve had L1-L2 collapse and it’s back to surgery tomorrow morning. I’m going to get off any opioids I have to take immediately post op ASAP. I’m convinced I can do it again.

Keep up the hard work. Ask the new GP for help giving you smaller doses of the patches as well as other non narcotic medications to help you. I’m well aware of just how bad your spine is and also the emotional and physical effects of being a caregiver. So please do ask for and take other options and use the MMJ. Hugs and keep posting on your progress.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Jul/31/2018 at 11:48am
Thanks Bailey and Stevie. Seeing as no surgeon wants to take a chance with my spinal issues, I thought to myself, “I’ll have to be on this stuff until I die. So I’m stopping them. My activity levels have dropped due to the stiffness and pain but I’ll get back to walking again soon.
Stevie, I am on Gabapentin, 600 mgs four times a day so that is helpful. Not on any muscle relaxer, the CBD products do that job.
Good luck tomorrow Stevie. See you on the other side of surgery he’ll.
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
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