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I Am Going To Get The Surgery I Need Finally !

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Post Options Post Options   Thanks (0) Thanks(0)   Quote PleaseHelp Quote  Post ReplyReply Direct Link To This Post Topic: I Am Going To Get The Surgery I Need Finally !
    Posted: Jul/27/2014 at 4:31am
Hello Everyone
It has been some time since I have been in the Forum. I have been in a tremedous amount of pain and very busy going and seeing different surgeons for there opinions. I have finally come across one that is going to do the surgery that I need. It took 6 surgeons to have 1 finally say, that the amount of pain I am in isn't caused from my nerves but is Mechanical. My Pain Specialist and I both new this for almost the last 4 years, since he had tried everything from injections to Radio Frequency Ablation and all kinds of meds. Sometime after September 11 2014 I will have a complete spinal fusion done. He wil start at the T10 level and fuse right down to the L5-S1. He will be useing bone graphs from my hips for the fusion, and putting in rods, that I beleave he said where going to be screwed to my pelvic bone. He has given me better than a 80% sucess rate on it, and feels he can aleveate the pain by somewhere between 40 to 50 %. My pain level on the scale is at least a 6 (on a good day ) to a 8 or 9 (on a bad day) , and thats on the medication.
I have been able with my wife to put together a great suport team for after the surgery, and will be getting a hospital bed brought into my lower level of my house, as I wont beable to go up the 15 stairs to my bedroom on the upper level. He has said that I could be in surgery for approx 8 to 10 hrs, and depending on how my nerves handle the tramua, I might have to go into Rehab from the hospital, do to total weakness in my legs, but wont know that until after the surgery.
I am so happy that finally maybe I can see some light at the end of this Pain Tunnel I have been in. I am really nerves about this whole thing, but I know its the best option I have(maybe the only one). I guess recovery will be long and painfull, but a different pain, and I almost welcome that. I will be doing a Daily Video Diary of Pre-Op and Post-Op. I have watched a few online and find they have helped me out by educating me on what to look forward to. I feel that I maybe able to help someone else feel more comfortable or Optimistic going through the same thing. The Diary will be posted on YouTube. 
Thats all I really have to say for now, just a waiting game now.
Take Care All, will chat again soon
Greg Hamilton
T11-S1 Instrumented Fusion, L5-S1 and L1-L5 Laminectomy.
7 levels fused. Sept 29 2014 https://www.facebook.com/greg.hamilton1
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Jul/27/2014 at 6:24am
Hi Greg,

I hope the coming surgery will be very successful. We'll be here to offer support and encouragement, while you wait and through your recovery. Wishing you all the luck in the world for a successful operation and return to a less painful life.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jul/27/2014 at 7:36am
Hi Greg,

You are going to be having a very large surgery (as you know), and it sounds as if your surgeon is being realistic regarding the % of pain reduction you can expect.  I do hope that you will be given a very good Physiotherapy program to follow you post op.

I though that you may want to take a look at this list of pre and post op needs so that you can have everything you can think of with you at the hospital, rehab facility, and at home: http://chronicpainsite.com/mb/forum_posts.asp?TID=709&title=pre-op-and-post-op-surgey-needs

Feel free to ask any questions you can think of and if we have some answers we are here to offer any and all support and suggestions as you get ready to have your surgery.  Best wishes, Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote pete81241 Quote  Post ReplyReply Direct Link To This Post Posted: Jul/27/2014 at 11:39am
i'm curious what you mean by the pain being mechanical as everything in the spine is mechanical in nature?......pal pete
parkinsons disease.men1 genetic disorder. endocrine tumors in pituitary gland and pancreas. carpel tunnel syndrome. spinal stenosis.sleep apnea.vast knowledge of crutches and wheelchairs.borderline diabetic.gerd. both hips replaced. spinal stimulator. 7 spine surgeries/fusions. pain pump trial.Thrombocytopenia. no spleen.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocken Roni Quote  Post ReplyReply Direct Link To This Post Posted: Jul/27/2014 at 12:18pm
Hi Greg,
It's great that you will be getting the help you need. Finally some one listened to you. Will be checking back to see how you are coming along. Very happy for you.


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1st injured Feb, 1997. Was told it was "Soft Tissue" and sent back to work - no X-rays
Late 1997 attended 1st Rehab Program to strengthen back. Mid 98 PCP took me off work. Tried going back to work over the next couple years, mostly off work due to pain.
June 2000, met with OS for first time. Did MRI , damage was L5-S1 totally blown out. Surgery done Jan, 2001.
Another Rehab program late 2001, attempted to go back to work early 2002. Slipped on water, fell flat on back screw fusion broke.
Went to 3rd Rehab program summer 2002.
Oct 2003 - 2nd Surgery, due to broken screw, had to operate from the front.
No improvement. Attended 4th Rehab program in 2004, at time It was decided NO work.
March 2006, had 3rd Surgery, this time fusion and instrumentation from Si to L3.
June 2008 Surgeon finally admitted I had Failed Back Surgery.
August 2009 WCB Finally put me on Long Term Disability
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PleaseHelp Quote  Post ReplyReply Direct Link To This Post Posted: Jul/27/2014 at 3:25pm
Hi Pete
Yes I know that the whole back is Mechanical, but for the last 4 years they have been trying to fight my pain thinking that it is Nerve Pain. And now this surgeon has finally noticed that the Stenoisis and Severe DDD that I have is where the actually pain is comming from. Any movement in my back causes pain. 
T11-S1 Instrumented Fusion, L5-S1 and L1-L5 Laminectomy.
7 levels fused. Sept 29 2014 https://www.facebook.com/greg.hamilton1
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jul/27/2014 at 3:37pm
Greg,

Many years ago ( prior to my first fusion) I was put in a back brace that I had to wear for weeks after the surgery. I noticed a dramatic improvement in pain prior to the surgery, as long as the brace was on, which my surgeon said was a very good sign that fusion would work. It restricted movement ( mechanical). The fusion was a success.

You may want to try a brace just to see if it helps you. Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PleaseHelp Quote  Post ReplyReply Direct Link To This Post Posted: Jul/28/2014 at 4:09am
Hi Stevie
I have tried a brace...and the restriction of movement feels alot better...
T11-S1 Instrumented Fusion, L5-S1 and L1-L5 Laminectomy.
7 levels fused. Sept 29 2014 https://www.facebook.com/greg.hamilton1
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Post Options Post Options   Thanks (0) Thanks(0)   Quote PleaseHelp Quote  Post ReplyReply Direct Link To This Post Posted: Jul/28/2014 at 6:25am
Hello Everyone
I am going to tell you, that I am so scared about going through this, but I know thats there is a good chance that I might be pain free, or at least at a Level that can be controlled. My wife and I are talking all the time about it, and my son we havent told that daddy is going to have another surgery again, we dont want him to stress out about it any longer than he will. With my last surgery he was pretty understanding, and I really couldnt beleave how much of a help he was. He is only 5 and it really hurts me that he even has to go through this at his age. My other kids are in there 30's and they live away from home out in Calgary Alberta, but supportave verbaly. 
I will find out alot more about what actuall procedure when I see him in September 11 2014 , but he did say from the T10 to the L5-S1 would be fused. It is so upfront in my mind right now and its hard for me to do anything at all with out thinking about it. Scared, Anxious, Hurting, got so many things going through my mind right now.  Sorry all , just had to vent a bit..
I will keep you updated.
Greg
T11-S1 Instrumented Fusion, L5-S1 and L1-L5 Laminectomy.
7 levels fused. Sept 29 2014 https://www.facebook.com/greg.hamilton1
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jul/28/2014 at 7:59am
Greg,

It is normal to be scared facing a large surgery.  Start writing down your list of questions, and have your wife go with you to see the surgeon.  Make sure all of your questions are answered.

My main concern is the number of levels that he's going to fuse.  Does your MRI show severe DDD and stenosis that actually start at T10?  Also, ask him if you will receive good, quality therapy after the fusion.  You are going to need to work with someone trained in this.

You have time now to start writing down questions and if you want to run them by us please do.  Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Jul/28/2014 at 12:59pm
Stevie's right Greg,

Anyone would be scared stiff. But we're always here to listen and support you and because we understand cp, we don't get tired of hearing about it.

Something that might help you, I know it would me, is doing as much planning for your recovery as possible. I know you've started and that's great, there are tons of things that can help make your recovery easier.

The more things you can do to be prepared, the less things you have to worry about. The surgery is more than enough.

DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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