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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Topic: New Articles
    Posted: Oct/25/2015 at 3:42pm
We are pleased to have been given permission from Dr. Lynn Webster, MD to put two very interesting articles in the Pain Management and Pain Medication Section of our Articles Home.  Dr. Webster has just published a wonderful, must read book about Chronic Pain called "The Painful Truth".  He has also offered to write an article specifically for our members which he will be starting in a few weeks.  We, of course look forward to having that to share with everyone when it's completed.

The articles that are now up are called, "Six Ways to Use Opioids Responsibly" : http://chronicpainsite.com/mb/Article/ArticlesTableview.asp?key=105  The other article is entitled " Empathetic Healing" :http://chronicpainsite.com/mb/Article/ArticlesTableview.asp?key=107

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Merlin View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Merlin Quote  Post ReplyReply Direct Link To This Post Posted: Oct/25/2015 at 4:56pm
Thanks for posting these Stevie - I have read them both and found them extremely helpful.
 
I have had my medication cut back in the last few months and this has caused more pain and yet - there has been no alternative offered - I feel I am not as badly off as many other people in the site and have not mentioned this - but my pain specialist sees me for a very short time twice a year and my GP has an entirely different view and believes I should have an MRI to see how damaged my spine is for no other reason than to know. I have felt hopeful after reading Dr Webster's articles this morning. The locums doctors I see have the same view.
 
To me it seems unfair to an extremely high degree that the drugs we need for chronic pain are the same that are abused by people who are addicted - and also that there are people who have chronic pain but still abuse their drugs.
 
From what I read in this site - and I read nearly everything - the people I know do not abuse their drugs and this site will have no argument with anything to do with drug abuse.
 
This vital point seems not to be understood by many people I come in contact with - most of whom have no medical training and I usually ignore these people. However  there are people in public hospitals and there is a pharmacist I know - and these people think they know that taking opiates/opioids makes the pain worse. I often wonder where they learned this and how they base their opinions on what they learned.
 
Thanks again for posting these links
 
Lin
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Oct/25/2015 at 5:11pm
Dr Webster has much to offer and I encourage everyone to read his book, "The Painful Truth". He offers the perspective from both health care professionals as well as patients points of views and believes greatly in a multi-dimensional approach to the treatment of chronic pain. Just as we do here on the site and have since we started in 2008.

We know that people on opioids will develop a physical dependence on their medications. We also know that some people will also become addicted. Just as people who have the trait for addiction can have problems with many substances----not just opioids.

We have been given further permission from Dr Webster to put an additional article on our site, and it will hopefully be available for members to read within the next day or so. It's called "Addiction Deserves Treatment with Dignity". I will put a link up to it as soon as it's in our Articles Home !!



Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocken Roni Quote  Post ReplyReply Direct Link To This Post Posted: Oct/25/2015 at 5:31pm
Sounds like a great article Stevie,

Will be watching for it.
Roni


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Until one has felt the Love of an animal,
a part of their Soul remains Unawakened.

Unknown

1st injured Feb, 1997. Was told it was "Soft Tissue" and sent back to work - no X-rays
Late 1997 attended 1st Rehab Program to strengthen back. Mid 98 PCP took me off work. Tried going back to work over the next couple years, mostly off work due to pain.
June 2000, met with OS for first time. Did MRI , damage was L5-S1 totally blown out. Surgery done Jan, 2001.
Another Rehab program late 2001, attempted to go back to work early 2002. Slipped on water, fell flat on back screw fusion broke.
Went to 3rd Rehab program summer 2002.
Oct 2003 - 2nd Surgery, due to broken screw, had to operate from the front.
No improvement. Attended 4th Rehab program in 2004, at time It was decided NO work.
March 2006, had 3rd Surgery, this time fusion and instrumentation from Si to L3.
June 2008 Surgeon finally admitted I had Failed Back Surgery.
August 2009 WCB Finally put me on Long Term Disability
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Merlin View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Merlin Quote  Post ReplyReply Direct Link To This Post Posted: Oct/25/2015 at 5:55pm
I just ordered The Painful Truth through Fishpond in Australia - the cost A$47.95
 
From what I read on the above links and the experiences I have been having with my pain lately I think this will be a very helpful book
 
Not only that - it is more than encouraging than Dr Webster is writing on the really difficult issues of Chronic Pain Syndrome when we want what everyone else wants - to live a half-way decent life and achieve the best results we can when so much is lost to us because of the pain that is so often not taken seriously by the medical profession
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Oct/26/2015 at 7:53am
Thanks for getting Dr We ster's approval for the articles Stevie.

I've read them and am really looking forward to his article written specifically for CPS.

DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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tkay View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Oct/26/2015 at 10:27am
HI.
I have started Dr. Webster's book so far I am liking what I am reading.
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Oct/26/2015 at 1:51pm
The third article that we've been given permission to reprint, " Addiction Deserves Treatment With Dignity" is now up:http://chronicpainsite.com/mb/Article/ArticlesTableview.asp?key=108

When we get Dr. Webster's article in the next few weeks that he's writing for us, I'll put the annoucement it in this section.  I'm glad to hear that members are reading and appreciating both the articles and Dr. Webster's book " The Painful Truth".  Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Oct/26/2015 at 8:30pm
Here is the book on Amazon:

http://www.amazon.com/The-Painful-Truth-Chronic-Matters/dp/0986140708/ref=cm_cr_pr_product_top?ie=UTF8
Ankylosing spondylitis & osteoporosis -> compression fractures -> facet & ligamentum flavum hypertrophy-> stenosis -> spinal cord & nerve root compression -> cervical myelopathy & radiculopathy -> bruise & deformation of my spinal cord -> incomplete spinal cord injury -> postlaminectomy syndrome of cervical region. Cervical laminectomy & fusion decompressed my cord but I now have severe chronic pain. Pain meds = Oxycontin, Percocet, Lyrica, Soma, Cymbalta, Voltaren Gel, & Ketamine pain cream. 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Merlin View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Merlin Quote  Post ReplyReply Direct Link To This Post Posted: Oct/26/2015 at 10:18pm
I have ordered the book Jeff - and it might seem I have paid a lot for it
 
However in Australia this would be what the book is worth - because of the difference in the AUD and the USD this makes the book pretty close to the correct amount
 
The difference here is that I do not have to pay postage to have it delivered from Fishpond - and this made a big difference
 
So although other people may not realise this - I think I am paying for what the book is worth - and I am really looking forward to receiving it sometime in November
 
Also I have told the Practice Manager at the Clinic where I go and she is very interested in reading it to - one thing individual members of this site can do is spread the word - not everyone sees us as addicts, drug-seekers, bums and stiffs - the people at the Practice where I go see that I am in varying degrees of pain when I go to the clinic and they have not treated me badly
 
And I have read the article on drug addicts - how cruel life is - people do not become "just addicts" - something in their body chemistry or their lives - probably both - lead them into the terrible place they cannot get themselves out of - and the word "just" in that context smacks of lack of justice.
 
I had not thought of it that way before - it has changed my mind
 
A programme I saw on TV today gave me something to think about - a story of a young man who had been in rehab a number of times would find himself clean but back on the streets again where he was hiding from something painful in his life - that gave me something to think about too
 
 
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Merlin View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Merlin Quote  Post ReplyReply Direct Link To This Post Posted: Nov/25/2015 at 8:37pm
I have nearly finished reading The Painful Truth and it is a real eye-opener and worth the expense I paid to have it imported.
 
I have to finish reading the last part of the book and go back and read anything I might have missed - but I will be lending it to the Practice Manager at the clinic I go to and she is a powerful advocate to the people she speaks for.
 
Things have changed radically for me since my old GP of 35 years retired last December - and having Dr. Webster's book has given me insight into the problems that are encounter by so many people dealing with the issues taking narcotics - and how to at least take as much control over the situation as possible for ourselves
 
The book is empowering
 
Actually I had not realised how many different things I use apart from medication. I meditate/pray/daydream/think a lot - depending on what one wants to call using the power of the mind, as well as eating a health diet and getting as much exercise as is useful given any day - but the change of GPs has made things hard for me
 
I can't see the point in stopping a number of medications so I could take something else that has side effects I am not prepared to risk. I finally asked my GP if he has noticed that I am taking so much less - and he has - and that was so helpful.
 
Also - we need to tell our medical advisers that this or that is not working for us - and although they think something "should" work - it may not be.
 
For years I have studied as much as possible about the medications I take - and now I am taking less I asked my doctor what I am supposed to have trouble with by "weening off them" - and expression I hate btw
 
So among feeling some confusion, finding it hard to sleep, headaches - I would have an increase in my back pain - and I countered this with
 
"Of course I have an increase in pain - I am not taking as many painkillers as I was taking - and I always have trouble falling asleep and my confusion is about why I have to go through all of this"
 
As I have read this book I realised that I am not the kind of person that has started to take the narcotics I need for pain for other reasons - and I don't think anyone else here has that problem - and it seems radically unfair that because some people do use the medication that they take for their pain and need for their pain for other reasons that all of us find ourselves in the same basket
 
Also I don't think there is shame when a person finds themselves in the position of using their pain medication for other reasons - it worked in the first place and they find themselves in a bad place - they are not bad people - they are unfortunate
 
I have had my share of emotional issues through my life - even this year - and I can't help thinking that I was brilliantly lucky at the darkest time of my life the sleeping tablets I was taking were not solving the problems I had to face at all - and they were not helping me to sleep either - and so I think that I am not inclined to start to overdose myself
 
But I am under dosing and this is a problem
 
However - after reading so much of this book I have learned about this problem and so many others facing the people I love in the United States - and it reminds me sharply of what I know about prohibition and how that was a useless exercise which caused death and corruption - failing those in need and lining the pockets of the unscrupulous. The same seems to be happening with the use of opiates and opioids and just as unfairly
 
I have read so much in these forums about the cost of medication, the difficulties in getting it - either a prescription or in getting a legal prescription filled. That Pain Specialists of regular doctors are refusing to write prescriptions for fear of legal comeback - or Government Agencies sending in a sting to trap the unwary into writing a script for pain medication for someone who has no pain and is in there to trap them (beyond bad)
 
And I have seen so much more trouble with insurance companies - and that the most vulnerable people in American Society are left in a terribly unfortunate state because of the issues that Dr. Webster has carefully explained in this book
 
I recommend everyone read it - it is worth the cost of the book and it is well written and easy to read
 
The whole idea of living a well-worth life is by enabling ourselves and we do this with knowledge. No one deserves to be humiliated and in reading this we can learn to stand-up for ourselves
 
And I hope that things improve - for this is an unfair situation - and no one should suffer because of this
 
Please read it and add your comments
 
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