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Cure: new book

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Bluegill View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bluegill Quote  Post ReplyReply Direct Link To This Post Topic: Cure: new book
    Posted: Jan/27/2016 at 8:57am
I heard about a new book on National Public Radio, so I've added it to my list:

Cure: A journey into the science of mind over body by Jo Marchant.  I heard just part of the conversation, but apparently chronic pain is a big focus of the book.

Has anyone heard of this book or read it?
In head-on car crash in 2006. Smashed kneecaps, broken hip, head injury,and other fractures. Daily knee pain (just a 2 or 3 or 4 on a scale from 1-10, so I feel like a wimp). Can't jog, walk long distances or stand for a long period of time. Surgery to remove bone growth on pelvis (2017). Ongoing hip pain, possibly trochanteric bursitis.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bluegill Quote  Post ReplyReply Direct Link To This Post Posted: Jan/27/2016 at 9:37am
Here is a podcast about the book:

http://www.npr.org/player/v2/mediaPlayer.html?action=1&t=1&islist=false&id=464372009&m=464458795


In head-on car crash in 2006. Smashed kneecaps, broken hip, head injury,and other fractures. Daily knee pain (just a 2 or 3 or 4 on a scale from 1-10, so I feel like a wimp). Can't jog, walk long distances or stand for a long period of time. Surgery to remove bone growth on pelvis (2017). Ongoing hip pain, possibly trochanteric bursitis.
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Merlin View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Merlin Quote  Post ReplyReply Direct Link To This Post Posted: Jan/27/2016 at 3:31pm
I read your link Blue - and I am very interested in brain plasticity
 
Concerning placebo medication - if that is not a contradiction in terms - I have an open mind - I would be very wary about taking part in a trial where placebos were used - I was in a drug-trial some years back (no placebos) and I got very sick - so that part of any improvement in my thought is on hold
 
BUT I do believe that activities such as prayer, meditation - or even day-dreaming - for the want of another word - can all have powerful effects on the development of certain parts of the brain - and the practise of these activities - done regularly with belief that they work - can indeed increase the areas of the brain involved with pain management.
 
However - I think these will work for some people - but not all. I have read that some people are told that they don't pray hard enough and that's why they still suffers all sorts of disorders - including pain - and when reading through the List of 65 Things that are Stupid regarding chronic pain (and other events in our lives) - it is not that we don't pray hard enough - or that we have negative thoughts are we are not good people - etc
 
So I think that some things work for some people some of the time
 
And there is nothing that will work for all people all of the time
 
But that space in between - that's vast and complex. Let's hope that there is something that will work for some of the people most of the time
 
But thanks for telling us about the book - brain plasticity is a vast area of study
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bluegill Quote  Post ReplyReply Direct Link To This Post Posted: Nov/27/2016 at 2:44pm
I was just about to post on a new book I just found called "Cure", but when I decided to post about it here in the "book and movie discussion club" I see that I already posted about it almost a year ago.

One good thing about getting forgetful is that I can pick up a book I've already read and enjoy it as if it were the first time reading it.

Anyway, I now have the book (checked out from my local library).  It looks good.  Supposedly it is an "objective" look at alternative treatments.

I'm a slow reader, so it may be a while before I post updates.

Full title: Cure: a journey into the science of mind over body by Jo Marchant.
In head-on car crash in 2006. Smashed kneecaps, broken hip, head injury,and other fractures. Daily knee pain (just a 2 or 3 or 4 on a scale from 1-10, so I feel like a wimp). Can't jog, walk long distances or stand for a long period of time. Surgery to remove bone growth on pelvis (2017). Ongoing hip pain, possibly trochanteric bursitis.
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Nov/27/2016 at 3:25pm
Thanks for the laugh Blue, that kind of thing never happens to me

I will look for your review once you finish, let us know if it's worth reading. If you remember :)
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bluegill Quote  Post ReplyReply Direct Link To This Post Posted: Dec/10/2016 at 9:06am
I'm still in just the first few pages of the book, but I have to post something here because I just don't get it.  Also, the latest National Geographic magazine has an article with the same theme ("Mind over Matter" December 2016).

What I don't get is the "honest placebo" movement.  Can anyone help me out here?  I've never really understood the "traditional" placebo effect, and I've just written it off as silliness or desperation when people claim they feel better., not knowing their pills were placebos.  But this new use of placebos is a completely different animal.

In a nutshell, "honest placebos" are placebos and the user knows they are placebos, but they work anyway.  There are companies that make fake pills and sell them on the internet as FAKE PILLS (but with bigger, medically-sounding names) and people buy them knowing they are fake.  There are even fake surgeries that work.

I just don't get it.
In head-on car crash in 2006. Smashed kneecaps, broken hip, head injury,and other fractures. Daily knee pain (just a 2 or 3 or 4 on a scale from 1-10, so I feel like a wimp). Can't jog, walk long distances or stand for a long period of time. Surgery to remove bone growth on pelvis (2017). Ongoing hip pain, possibly trochanteric bursitis.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/10/2016 at 9:30pm
Well Blue----

You aren't alone. I don't "get it" either. Honest placebo? People buy them? Ye Gads.

I've run drug studies where my patients were either on the real stuff or a placebo. I didn't know either. But it became very easy to determine who was getting what due to real improvement in symptoms (in this case Parkinson's).

How or why anyone would admit to paying for a sugar pill thinking it would work is just beyond me. I guess I need a lot more info on this topic to get it

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My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bluegill Quote  Post ReplyReply Direct Link To This Post Posted: Dec/18/2016 at 9:11am
I finally finished the book.  I think the author is very intelligent and she has done a lot of research.  But, for me the book wasn't great, because it didn't speak directly to my condition.  I realize this is a selfish perspective.  It's sort of like going to a karaoke bar; the only bad thing about karaoke is when other people sing.

The author aims for middle ground between science and alternative medicine, and she does a fairly good job of that.  Here's a sample of her cautious prose from the conclusion: "More basic research is needed; we're only just starting to understand the complexities of the connections between brain and body."

If you can find this book in your local library, you could just read the 15-page conclusion and get a pretty good idea of what this book is about.  You could also scan the index to see if she deals with your particular ailment. 

If nothing else, she demonstrates how the scientific method works and how science is funded.

So, if you're a science geek, it's a good book. 
In head-on car crash in 2006. Smashed kneecaps, broken hip, head injury,and other fractures. Daily knee pain (just a 2 or 3 or 4 on a scale from 1-10, so I feel like a wimp). Can't jog, walk long distances or stand for a long period of time. Surgery to remove bone growth on pelvis (2017). Ongoing hip pain, possibly trochanteric bursitis.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/18/2016 at 2:23pm
Thank you for the unbiased review on this book.

Fact is that there are so many factors involved in the treatment of CP---related to the disease or disorder process. All of us here understands this better than 99% of the population including so called "experts ". No one who doesn't live with pain that never goes away can possibly help everyone with a book or a single treatment option---- and as we know too well, its trial and error for each and every one of us.

IMO, that is the major reason we don't have a "cure" or that magic bullett available and also the major reason it's nearly impossible to get the "normals" to understand what we deal with.

Thank you Blue:)

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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