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Nerve pain in feet and hands

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senior63 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote senior63 Quote  Post ReplyReply Direct Link To This Post Topic: Nerve pain in feet and hands
    Posted: May/20/2016 at 3:00pm
I have ALS,dx in 2010.Slow progression in hands and arms only.The last 6 months I have nerve end pain in hands and now feet,progressive and severe,legs are weakening.
 The nerve end pain is not normal in ALS.I think sensor neuropathy.I have never had a mri of the brain.Any advise?
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: May/20/2016 at 4:00pm
Are you under the care of a Neurologist? That would definitely be the person to advise you on a proper course of action.

I'm not sure how much of the leg weakening is from the ALS, but neuropathy can be caused by illnesses such as diabetes as well as back problems. This may be a case of ruling out other conditions.

Welcome here:)


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My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote brianmful66 Quote  Post ReplyReply Direct Link To This Post Posted: May/26/2016 at 3:20am
I think naturopathy treatments are used to treat chronic pain, digestive disorder, insomnia, fatigue, etc. Is it effective for ALS?
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Edie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Edie Quote  Post ReplyReply Direct Link To This Post Posted: May/27/2016 at 11:34pm
Hi

Welcome to our site

I really don't know much about this condition, but I have heard about it. As I understand it is a progressive disease, and it seems that they are working hard at finding a cure fore it. I understand that so far there is a medication that helps to slow down its progression.

 Since you say that nerve ending pain is not a symptom of ALS, I think an MRI of your spine would be useful to find out if there is something else other than the disease causing them. I don't know about an MRI of the brain. I hope you are seeing a Neurologist. This specialist can help you decide the best way to go about finding what is causing those symptoms.

I hope to hear more about you. Are you in any medications? Are you in a lot of pain?

In this group we share our experiences, and help each other by listening and offering support. I just wish I could have been of more help...Edie











How long since you were diagnosed? Are you under some
Chronic pain throughout the spine caused by osteoarthritis (DDD). Started at neck, spread to thoracic, and lately to lumbar area. Most of my spine is affected by bulges, disc height loss and dehydration, bone spurs, annular tears, foraminal stenosis, probable nerve impingement, and degeneration at end plates and facets.

The disease extends from Cervical C2-3 to C7-T1. Thoracic T4 to T10.
Lumbar T12-L1 to L5-S1.
It is all non operable.

Other conditions
TKR R Knee.
Torn ACL, MCL L knee,
Pain on legs and calves
Deep vein thrombosis
Migraine headaches
Painful spots all over scalp
COPD
Hypertension
Chronic Hyperventilation. Caused by anxiety or stress
Chronic depression and insomnia
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senior63 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote senior63 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/04/2016 at 10:53am
I think sesory neuropathy.MD says not treatable and in Canada a neurologist is a year wait.Pain in hands is severe.400mg a day of lyrica works till evening.Than I need sleeping pill.This is fine except every few weeks my immune system says more sleeping pills.So once a month I get off pills,3 nights no sleep to get sleeping pills out of system.With lyrica no sleep it doesn't work.It is 3 days of hell.I tried percoset but good for one day.I am now thinking fentynal patch.I don't wan't narcotics.Why is lyraca tied to sleep?
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Jun/04/2016 at 11:20am
Hi senior63,

Who is looking after your health care? You certainly need more than your MD with an ALS diagnosis, are you on a wait list to see a neuro?

Nerve pain is difficult to manage, narcotics like Percocet or fentynal are often ineffective. Have you considered medical marijuana? It can be very helpful with both nerve pain and sleep. Topicals applied to the hands and feet, tincture, edibles or vaporizing for both pain and sleep.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/04/2016 at 11:47am
I agree with what Bailey said. I'm not convinced that narcotics are the answer for neuropathic pain, especially in light of the Lyrica helping so much.

Is there a reason you aren't taking Lyrica at night? It normally helps with sleep, while narcotics disrupt sleep.

I too hope you have a Neurologist treating you and would surely give MMJ a try:)

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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senior63 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote senior63 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/10/2016 at 3:08pm
ALS neuro says hand pain is a not als and refered me to doctor which had no idea.My gp is not responding for referral for neuro.
Lyica seems to be tied to sleep.A normal sleep no pain till 2pm.No sleep pain always.
I take 100mg 4 times a day

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Edie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Edie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/14/2016 at 1:08am
Hi Senior63,

I would think that not been able to sleep is more related to your pain. It is difficult to be able relax and get to sleep while you are in pain. When Lyrica quiets down your nerves it eases off your pain, allowing you to rest easier.

You may want to see if your doctor prescribes different things for you to use during the days you don't use your sleeping tablets.

I also have problem with sleep, and fear to get dependent on sleeping pills. But I do have to use them. It seems I can no longer sleep without some aid. To break out the sleeping pills routine, sometimes I use a muscle relaxant instead. I also use an anxiety medication, that helps a lot, though my doctor is now trying to cut me off them. Even with these medicines, I don't get to sleep till 3 or 4 in the morning. But, a little sleep is better than nothing. I usually read, or play games on my tablet, in bed, until I drift off. I also try to occupy my mind by thinking about a story  I've read in some book, or some movie or show I've seen. Anything that can distract the mind and keep it away from that that is preventing me sleep

 I know they say we shouldn't sleep during the day, but when we can't sleep at night because of pain, it wouldn't hurt to catch a little nap whenever we can, no matter what time of day or night it is.

I hope you can get that referral to see a neurologist. The waiting a year is rough. Can't imagine what they expect a person to do in the meantime...Edie




Chronic pain throughout the spine caused by osteoarthritis (DDD). Started at neck, spread to thoracic, and lately to lumbar area. Most of my spine is affected by bulges, disc height loss and dehydration, bone spurs, annular tears, foraminal stenosis, probable nerve impingement, and degeneration at end plates and facets.

The disease extends from Cervical C2-3 to C7-T1. Thoracic T4 to T10.
Lumbar T12-L1 to L5-S1.
It is all non operable.

Other conditions
TKR R Knee.
Torn ACL, MCL L knee,
Pain on legs and calves
Deep vein thrombosis
Migraine headaches
Painful spots all over scalp
COPD
Hypertension
Chronic Hyperventilation. Caused by anxiety or stress
Chronic depression and insomnia
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senior63 View Drop Down
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Newbie


Joined: May/20/2016
Location: canada
Posts: 4
Post Options Post Options   Thanks (0) Thanks(0)   Quote senior63 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/18/2016 at 11:20am
I am going to ask gp to go off sleeping pills and go on saraquil hoping to get longer sleeps and naps hoping lyrica will be more effective longer.
When I go to ALS clinic I will ask for a decision.Is this ALS? if not please diagnose or refer.
l am taking oxycodone for pain in the evenings and its taking its toll on me.I want off ASAP.Lots will depend if pain gets worse will update.I believe I have 2 neuropathies,motor and sensor.
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