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Advocacy for Chronic Pain Patients

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eileenbunny View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote eileenbunny Quote  Post ReplyReply Direct Link To This Post Topic: Advocacy for Chronic Pain Patients
    Posted: Mar/02/2017 at 9:46am
On February 14th I, along with 120 other advocates, spent the day visiting various members of the senate and the house to talk about chronic pain.  We had 160 visits and most went well, but we definitely need more support.  Here is the gist of our message to congress.

Chronic pain is the single most costly US health problem by far.  Pain costs $560-$635 billion dollars a year in the US which is about equal to 3.5% of the US GDP.  By weight of comparison, the combined costs of heard disease and cancer is about $552 billion per year.  Back/neck pain and headache disorders are the 1st and 4th leading causes of disability in the US.  28.7% of Americans have chronic pain.  It's not hard to see why we have an opioid epidemic as they are the default treatment for pain.  The reason is because we don't have many other treatments and it is unethical to leave people in pain.  We all know that opioids make it possible for many of us to survive, but we also know it isn't an ideal or even totally effective solution to our pain.  25% of people who take opioids for chronic pain eventually misuse them and 10% become addicts.  91 Americans die daily of opioid overdose.  Safe, effective, and affordable chronic pain therapies are urgently needed to replace opioids.  If new therapies reduced US pain costs by just 1%, it would save $6 billion annually.

Last year, as we all are likely painfully aware, congress passed the Comprehensive Addiction and Recovery Act (CARA).  While it seems like a great idea on the outside, the implications for many of us have been dire.  What isn't as public is that within that act was a directive to NIH to fund more research for better treatments for chronic pain.  However, CARA didn't include funding provisions.

Here's where you come in.  Senator Brian Schatz and Congressman Peter Welch are putting together a work group to draft a bill they would like to introduce in April.  This is an appropriations bill that will fully fund CARA Section 108 - Provisions to prioritize NIH pain research.  This is important, bipartisan legislation, that could really have an effect on how we are treated.  Please contact your senators and representative and encourage them to join this work group or at the very least support the bill when it comes out.  I'll update at that point.

Eileen
Chronic daily headache without real designation resulting from severe meningitis

Non-hodkins lymphoma survivor since 2003
Ruptured disk at C5-C6
Inferior alveolar nerve damage
Depression, PTSD with dissociative tendencies
I also have some yet to be diagnosed immune deficiency that is causing fatigue and severe joint pain.
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Mar/02/2017 at 1:45pm
Thank you so much for posting this, Eileen and for your ongoing work in our Nations Capital bringing awareness to the plight of so many suffering with chronic pain.

There's never been a time like now to make our voices heard. The stories we are hearing of too many CP sufferers who are being denied treatment are heartbreaking. We desperately need research into safe and effective treatments for all types of chronic pain. We know that opioids aren't the ONLY answer --- if they were we wouldn't still be here doing this site because no one would have any questions. It IS time for funding for all of us to have options without the ongoing problems we now face without stigma and side effects and quite frankly inadequate pain control.

So please----everyone---contact your legislators and make your voices heard. There's great power in numbers!!!!

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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dbarbeau48 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Mar/02/2017 at 6:46pm
Thank you for your time and effort Eileen. The problem with trying to educate politicians is they want to do what's easiest for them. Currently, the easiest solution to the opioid crisis is to order drug companies to make less opioids. In my case, and probably all chronic pain patients, it means having to jump through more hoops to get prescriptions filled. I dread the end of each month when I have to get my pain meds refilled, waiting 48 hours for the doctor's office to tell me I can come to the office to get my prescriptions, than off to the pharmacy only to be told they don't have them and wait god knows how many days before they come in. All this because the federal government ordered a 25% reduction in production of opioids. Sorry for the rant but I am tired of being treated as a drug addict.
Dick
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Edie Quote  Post ReplyReply Direct Link To This Post Posted: Mar/03/2017 at 1:22am
Wonderful Eileen. We really appreciate the work you are doing.

I have already been approached several times by my doctor informing me of the necessity of cutting or stopping my medication. At least he wants to start weaning me very slowly to avoid withdrawals. Last time we came to the decision to start cutting down 5 mg out of one of the 3 - 45 mg Morphine doses I take a day. Then, after talking with the pharmacist, we found out that because of the doses the tablets come in, that was not a possibility. So he left things as they were for the time being. But I am in constant fear of the day when he will have to start getting very serious about this, and start cutting down my meds in a drastic way.

In the last 10 years I have not had one minute without pain. The medicine I get barely works anymore, but it keeps me out bed and somewhat active. I usually ask my doctor, if I were to quit the medication, what would I do for the pain. His response is that hopefully, with time my body would adjust to the pain, and then I wouldn't be hurting so much. I asked him if I ended up not being able to handle the pain, would it be possible to get the medicine back. He said that would not be possible, because things are no longer up to him.

It is a very scary proposition for me. I hate having to live depending on these drugs as much as I hate living in fear of having them taken away. I really wish there was some other way.

Good luck, and thanks for all you do. I will try to do my part also, by contacting my representatives and bring up the issue. If you have any good suggestions on how to go about that, please let me know, as I am not very knowledgeable in these matters....
Chronic pain throughout the spine caused by osteoarthritis (DDD). Started at neck, spread to thoracic, and lately to lumbar area. Most of my spine is affected by bulges, disc height loss and dehydration, bone spurs, annular tears, foraminal stenosis, probable nerve impingement, and degeneration at end plates and facets.

The disease extends from Cervical C2-3 to C7-T1. Thoracic T4 to T10.
Lumbar T12-L1 to L5-S1.
It is all non operable.

Other conditions
TKR R Knee.
Torn ACL, MCL L knee,
Pain on legs and calves
Deep vein thrombosis
Migraine headaches
Painful spots all over scalp
COPD
Hypertension
Chronic Hyperventilation. Caused by anxiety or stress
Chronic depression and insomnia
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Mar/09/2017 at 7:49pm
Good job.  I got a message to Attorney General Sessions regarding chronic pain.  Will see what comes of it.  I'll definitely lobby for support of funding!
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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sara1 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Mar/12/2017 at 3:41pm
Dick I get 3 months of Fentanyl patches and pain pills when I see my Dr. I have to return the used booklet of used patches but seeing the Dr. every month for stable chronic pain seems like a hassle. Its not right unless your Dr. is concerned about your health on those meds. 

Eileen it would be good if they spent more money in research especially stem cell treatment but in the mean time I hate to see Drs pull people off opiods when there's no effective replacements yet.
I'm glad you have a group to present to the House. Sara 
DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing Neck-reverse Lordosis of c-spine C6-C7 with impingement, numb hand and sore outer elbow. Bursitis to both knees. RN
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Mar/12/2017 at 4:35pm
I'm just about in crisis mode. I saw my Internist of 21 years this week for a knee injury following a fall. She's been treating my CP for the past 10+ years. She said she may have to send me to Pain Management soon---her practice has been told they are being watched for overprescribing narcotics which is crazy as they haven't even taken any new pain patients on narcotics for several years. I'm too old and too worn out to start looking for some PM who will actually prescribe without making me go through useless injections or other procedures, having to sign a contract and pee in a cup. Or refuse me my right to use MMJ per the laws of my State.

It's so bad now that local Oncologists aren't prescribing narcotics for their patients in pain, and my Dr said she can't either. Off they go to PM.

Something has to be done and FAST.

Please everyone read the thread in the MMJ forum-----A Possible Game Changer". It's a tremendous start to be put on national television even though many clinical studies are going on in other Countries. But actually seeing this on TV with real elderly CP sufferers is tremendous.

It's way past time our government funds and researches safe and effective medications for us all. It's way past time for this stigma to go away.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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dbarbeau48 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dbarbeau48 Quote  Post ReplyReply Direct Link To This Post Posted: Mar/13/2017 at 3:23pm
Sara,
Opioids can only be prescribed for 30 days at a time in the USA. I've read where the govt is looking at making it 10 day supplies.
Dick
Five knee surgeries from 1970 to 2000. Knee replacement in 2000.Spinal stenosis surgery in May of 2002. Diagnosed with Pseudogout in 2005, effecting hands, knees, and shoulders. Emergency surgery in March of 2006 for spinal infection of L 2 and L 3. During surgery, discovered I had Cauda Equina Syndrome. Spine became unstable after surgery and had 360 fusion with 10 pedicle screws, plates and rods in April of 2007. Retired early as a high school principal. Recently, have had trigger finger surgery on both hands as well as surgery for severe bi-lateral Carpal Tunnel disease.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Booger54 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/04/2017 at 1:46pm
Hi Stevie and All,
     I was just wondering if your situation has changed at all.
Last September, my GP, who had prescribed my pain meds for me for years moved. The last thing he did on the day he left was to fill my Rx with a titration down from 90MME to 75MME them to 60MME. I argued with my new "Doctor" who knew nothing about chronic pain, but it did no good. The last Rx I had was titrating down and off in December. I was in severe pain and sent to see an "addiction specialist" who wanted to put me on Suboxone. She told me, and I had a witness there, that it would help with my pain! I went home, looked it up on Drugs.com, and one of the first warnings was "Not to be used for pain control." So, aside from being treated as an addict, I was also lied to by a "specialist". My PM Dr. saw the Suboxone Rx on file and refused to prescribe for me even after telling him I did not pick it up, nor would I take it because of the Naloxone in it.
     I found some 9 or 10 year old tramadol I had taken for ages until it became ineffective and started using that again. It just doesn't do much at all. So, come evening, I had been in acute pain and basically non-functional at all. I've had to turn elsewhere for evening pain medication which works. 
     That is what the medical field is doing to us. I know a few other people in CP who have had the same happen to them and are finding "other sources" for what they need. The way we are treated (or not treated, I should say) is irrational. This afternoon I'm going to have a discussion with my new GP and tell her exactly what is going on and see if approaching her with common sense, factual information, and CDC statistics, has any impact on her.
Good luck to you Stevie, and to all the rest of you who may be having problems with medication just to be somewhat functional.
"I'm as mad as hell and I'm not going to take it anymore"
Peter Finch - movie "Network"
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Booger54 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/04/2017 at 2:06pm
Addendum to above.
                              I was just getting ready to hop in a shower before I went to my 1:15 GP appointment. Her office called and said that she was sick and leaving early. I had to reschedule for later this month. I personally think that she doesn't want to have me as a patient.
We REALLY do need advocacy as the topic of this thread mentions. Much advocacy!
 
In all my years (9 - 10) of taking morphine sulfate, I have NEVER asked for an early prescription for any reason, NEVER taken more than prescribed, all in all, never abused or misused it in any way. Nor have others I know in the same position as I am now. I wish there were some kind of class-action lawsuit for all of us. But who to sue? CDC? DEA? Both and more? ...Booger54 
"I'm as mad as hell and I'm not going to take it anymore"
Peter Finch - movie "Network"
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Kate View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kate Quote  Post ReplyReply Direct Link To This Post Posted: Apr/17/2017 at 1:15pm
I am the same way. Always taken medication as prescribed, never asked for more, and I don't drink alcohol. But I'm treated like a crminal. They have refused to prescribe a fentanyl patch for me which bypasses the stomach and a lot of the liver. At least my liver showes no damage when tested.

When will they have some kind of medicine that works? If we can file a class action suit count me in!

Kate
Pudendal Decompression Surgery 3/14/2011 failed
L3 to S1 all fused Surgery 8/22/2012
Degenerative Disc Disease
Failed back surgery syndrome
Knee replaced
Sero-negative Rheumatoid Arthritis
Fentanyl Patch
Spondylolithesis of back
CRPS
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Post Options Post Options   Thanks (0) Thanks(0)   Quote eileenbunny Quote  Post ReplyReply Direct Link To This Post Posted: Apr/21/2017 at 2:25pm
Update:

Sen Leahy has agreed to support inclusion of a new CDMRP program for "Chronic Pain Disorders" for us. He is Ranking Member of Appropriations overall.

Also "the big pain appropriations bill has now been reviewed by Sen Schatz's Legislative Counsel, has been formatted as a real Senate bill, and is still on-track to be introduced next month."

While these are steps that are being taken for the future, it doesn't do anything to address the present, and for now we are without ideas for how to handle this. On the one hand we really do have a paralyzing opioid epidemic, but on the other we have people who are choosing between horrendous pain and suicide.  I hate that people here are in a bad situation like this.  I wish for new solutions faster.
Chronic daily headache without real designation resulting from severe meningitis

Non-hodkins lymphoma survivor since 2003
Ruptured disk at C5-C6
Inferior alveolar nerve damage
Depression, PTSD with dissociative tendencies
I also have some yet to be diagnosed immune deficiency that is causing fatigue and severe joint pain.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Booger54 Quote  Post ReplyReply Direct Link To This Post Posted: Apr/21/2017 at 2:42pm
Great news eileenbunny! I have written to both of my Senators and one to Vermont's Senator Sanders. I know that the latter cares deeply about how our veterans are treated. There is one I know who lost half a leg and has other damage. The V.A. took away his pain medication and that really ticked me off! These men and women put their lives on the line for this country and for the Veterans Administration to treat then like that is reprehensible.
So maybe, just maybe, these senators will get together and do something, but the wheels of government seem to move slowly - unless we have a prescription opioid crisis.
And Kate: I'm still waiting to hear from a battery of attorneys who have been well informed of our situations.
"I'm as mad as hell and I'm not going to take it anymore"
Peter Finch - movie "Network"
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Apr/21/2017 at 4:58pm
Thank you for the update Eileen. It's a great start and we have to start somewhere.

I'm just infuriated by the total lack of facts being presented to the public regarding the opioid epedemic. Because it's NOT due to the patients in daily chronic pain who never misuse their meds. Sure---there are people who become addicted to prescription narcotics--but there are people who become addicted to anything.

I can remember when the government got involved with replacing the ER narcotics with the so called abuse deterrent formulations. Our members became sick from them and found that they weren't very effective. It was shortly after that that heroin once again became rampant in use by those people using street drugs along with other opioids laced with dangerous chemicals. That action harmed those who once again didn't abuse their meds---it just drove those who DO abuse drugs to return to the harmful street drugs that are cheap and dangerous.

It's past time for straight reporting about the FACTS. Let Drs treat their patients and get politicians who don't understand what it's like to live in pain 24/7 out of OUR lives.

"Do no harm". Time to get back to basics and time for our legislators to get educated on the medical facts. Your hard work is so very much appreciated.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote eileenbunny Quote  Post ReplyReply Direct Link To This Post Posted: Apr/23/2017 at 11:41am
Abuse resistant formulations were a scam that created this epidemic I think.  It's been a while since I actually dug into the truth, but even stuff like tramodol that is relatively mild and was marketed as completely safe has churned out tens of thousands of addicts due to its unpredictable nature.

It all goes back to money and it makes me sick.
Chronic daily headache without real designation resulting from severe meningitis

Non-hodkins lymphoma survivor since 2003
Ruptured disk at C5-C6
Inferior alveolar nerve damage
Depression, PTSD with dissociative tendencies
I also have some yet to be diagnosed immune deficiency that is causing fatigue and severe joint pain.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: May/01/2017 at 9:29pm
I've sent letters to US Senators and Congressmen and urged them to no enact wreckless regulations that mimick real solutions but wind up mistargeting the unintended.  They need to prosecute illegal drug dealers and deal with them rather than passing general distribution regulations that have are driving doctors to drop patients and making it impossible for people to move in the United States for fear of not getting a new doctor willing to take the risks imposed by our own government.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Nov/09/2017 at 1:34am
Hi everyone I am just going to jump in as I see these the posts are back in may. I haven't shared all my pain issues as I have been desperately trying to find us hope, and finally I have at least found a news station airing what is happening to Chronic Pain patients. Chanel 8 KLAS in Las Vegas NV is doing a piece on the other side of this so called epidemic. Please share at #mypain,  tonight at 11pm  they are following a chronic pain patient from when they pick up there prescription trying fill it. I have written to the White House but have only gotten a thank you. I hope that we can at least have a voice with this news station. this a two part one Aires at 6pm and then at 11 pm it seems to be a two part investigation. how they will be doing this I don't knowSmile       
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Nov/09/2017 at 12:29pm
Thank you Denise. I will see if I can google the station to watch this. Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Nov/09/2017 at 2:26pm
Hi Stevie, my humble apologies as I was in a rush to get this out that i forgot a few things..like Lasvegas.com #ourpain Denise 
Denise
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Nov/12/2017 at 3:43pm

Hi Everyone I want to get right to the point on this. the National Pain Report Emailed me an article (for lack of a better word) written by Suzanne Stewart. Inside curable lives when you read more of the story it will take to Introduction To: Incurable Lives. This is a very important with all that is going on. Please check this out as it directly effects all of us.I have written the White House in hope to talk with President Trump, and explain that his Commission is one sided and has forgot about us! So we need to get our voices out there.  

Denise
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Nov/14/2017 at 3:52am
We need to  change the perception that we are NOT THE PROBLEM.

Tell the government to go get the illegal drug dealers and treat them the way they do in Thailand.  Problem solved.  https://drugabuse.com/the-20-countries-with-the-harshest-drug-laws-in-the-world/

Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/16/2017 at 3:03pm
I went to my Pain Dr and the Intern asked me if I ever tried to decrease my pain meds. What a crazy question! I offered to see the Physiotherapist and Cognitive Behavior Therapy (CBT) as part as their pain program but I doubt this will help the chronic pain I've had the past 9 years. 

My lumbar spine had one herniated disc when I stopped working from the pain and now all my discs are herniated and degenerative discs keep degenerating and nerves are getting compressed . I feel like my spine is being squeezed all the time. I doubt I'll ever stop pain meds unless they come up with a miracle. Radiofrequency really helps though but doesn't take away the pain completely.

Every person should be evaluated on an individual basis but to stop pain meds altogether is not right. 
DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing Neck-reverse Lordosis of c-spine C6-C7 with impingement, numb hand and sore outer elbow. Bursitis to both knees. RN
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Nov/19/2017 at 3:54pm
New Info National Pain Report has sent a Call to Arms. Terri A Lewis, PHD posted a powerful blog. but what is great  are replies of people that are standing up to this what has become a constant attack on this medication and our lives. This is not the first time this has happened, and I have been a busy bee lately with emails to white House, News Stations we do have an ally with the Las Vegas CBS #ourpain, and also I'm going to meet with the Pharmacy director at Walmart as they are have been wonderful to me for many years, and as long as I still get my Pain medications they will fill them. which as of Friday I was once again thrown under the bus!( Monday I will be out of Meds) when they sent the two in black scrubs out to the waiting room, I already knew. Oh and the object of stating the color of there scrubs "which most of you know" they are in training wheels. I have already changed my insurance to Humana still waiting to see if I am excepted but sure I am. I would also like to mention Richard A Lawhern PhD will on November 27th Pacific coast time. will be on Coast to Coast am radio 0100-0200, and interviewing no less than the principal Reporter George Knapp from the #ourpain. they will be covering a lot of territory on what has been happening to us. So Please try to find a way to listen we really need to stand up to this. If there is anyone that needs more information on a personal level it would be my privilege to talk in person just email me..Stay Strong     
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Nov/19/2017 at 10:33pm
Thank you so much for sharing all of this information with us. I would ordinarily be on top of all of it but because of family issues and grief I don’t have any energy right now.

So I thank you from the bottom of my heart for your ongoing fight for all of us who feel we have little say these days. But we must fight. It’s a crime that those of us who are struggling and have never done anything wrong to be unable to get the help we need.

I will be with you fighting for our rights as soon as I have enough energy to do so. Thank you Denise

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My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Nov/20/2017 at 5:35pm
Stevie No Worries I understand that  aside from everything we are dealing with having to go through it with a broken heart from your loss. Please just rest and heal.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Dec/11/2017 at 5:09pm
Hello I've been putting together a plan to address this problem they have created for us, and there is some great news to share with the group. Also Stevie I have been keeping you in my prayers. As I mentioned before I follow a site which some may or may not know about, and I will share it again it is the National Pain Report. this is another site that has a lot of story's about People in Pain, and also a lot of information. One of which I just read and have request what these two women have done. it was titled How a Senator's Office listened to Chronic Pain Advocates. a must read Racheal Beal's and Ms. Stacy Fields had the ear of there State Deputy Director, Brandon Herget. Now they came prepared with important information, including statistics, other important data, and personal stories which relayed the agony of Chronic Pain. The comments were full  of request for there information that was used in there meeting, and just today I received from Racheal, there are putting together that info. for all to use. so it is my belief that if we all pull together in our own States armed with facts! I know that we will no longer be ignored. I know that we all have immense pain and we are dealing with fear of the unknown. So if it is alright with moderators of this site, I would like us all to come together and get a plan we need to Stand up against this injustice. I for one am not going to go down without a fight! I live in Las Vegas NV is there anyone one else in Nevada?.   
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Dec/12/2017 at 4:07am
I spent a week in Las Vegas at a missile conference but nonetheless we can ban together over the internet.  I'd like to help lead the charge.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Dec/12/2017 at 8:02pm
Great to hear that you are on board. I have just emailed Rachel for the information. I have also printed the documents that Chris Christy has compiled to give to the President, and I have survived the last attack that the DEA had attempted to stop the Pill Mill epidemic. this soon to be x governor as of 1/2018 wanted to be Trumps VP Christy is a Lawyer, Lobbyist and a politician, and that is how he has managed to create this nightmare. I'm not sure how much you of him but I have looked into what he is about and this is not going to be an easy fight. This is why we are not being heard He is plugging the swamp hole. What do you have in mind? I do have a media here that has taken an interest on our side. #ourpain I would like to contact the reporter that did the series back in November so that it is not going to be swept away. People do forget we can't let me know what are your thoughts. Be well here is my email brokenglass57.df@gmail.com           
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Dec/13/2017 at 5:36am
I sent you an email Denise :)
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dee19 Quote  Post ReplyReply Direct Link To This Post Posted: Dec/14/2017 at 7:55am
Thank you so much for this information. I have heard of many doctors and groups going to talk to Congress. I wonder if they are listening. I saw this request to remove any pain medication over 30mg. I am hoping people will comment on it Once PROP get this approved they are going on to ban the rest  Thank you https://www.regulations.gov/docket?D=FDA-2017-P-5396
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dee19 Quote  Post ReplyReply Direct Link To This Post Posted: Dec/14/2017 at 7:59am
I belong to several pain groups on Face Book as well as Twitter. I think, to make a difference we all need to band together. The end of November a few of our people were able to meet with Congress, yesterday the doctor who is so supportive med with Andrew Kolodny to try to tell him how much pain patients are suffering. Thank you again, Dee
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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George Knapp a reporter has done a 5 part series on the other side of opiates. It's very good, you can view it on YOUTUBE.  He also has an hour long special coming out on December 30th.  I hope everyone can see it.  Also PROP is asking the FDA to remove all pain meds over 30mg off the market.  Many of us are trying to get people to comment. It only takes a few minutes to respond. You don't have to give your history. You can say something as simple as "I am in pain, I need my medication, please don't remove pain medications from market"
Once they do this, they are going on to all pain meds, I am very afraid. Please comment on the below link, thank you  Did you know doctors are removing the pain scale from their language. It is no longer the 5th vital sign.

https://www.regulations.gov/docket?D=FDA-2017-P-5396
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/14/2017 at 2:41pm
Thank you for your post and link Dee.

We are at the mercy of a political nightmare that is causing horrendous problems for chronic pain patients and through NO FAULT of those of us who have no better options. WE aren’t the cause of this so called epidemic. But if the government thinks there is a crisis now wait until legal opioids are removed from the shelves of our local pharmacies. The same goes for medical marijuana if it too is removed from those States where it’s “legal” and enabling so many to decrease the amount of narcotics needed for any quality of life.

It’s up to us to fill out comments in the link you provided and to hound our Congressional leaders. I worry about our futures.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Dec/15/2017 at 6:06pm
I told them to quick pandering to politicians who want to claim an artificial victory over a helpless victim and causes severe and inhumane torture to millions rather than having the courage to go after the illegal street trade where the real problem lies.  None of us on pain medicine abuse our prescriptions nor do we sell them to the public or anyone else, and without them we would not wish to continue to survive.

This is an assault on our quality of life or what little remains of it.  If the FDA is going to go to war, it needs to go after the illegal trade and stop prosecuting those helpless victims like myself with so many painful conditions even with the medicine life is hard to bear but without them, life would have no quality at all and then what will you achieve?
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Dec/15/2017 at 8:12pm
Does anyone know a really good attorney with expertise in areas where our cold, careless government is attempting to legislate medical treatment without any knowledge of our actual medical conditions, an attorney or member of the media who can help us stand up to the FDA and CDC who are becoming directly responsible for the cruel and inhumane torture of our citizens by withholding the very medicines we need to relieve our otherwise excruciating pain, to afford us some small quality of life?  

Our own inept and careless government is equating legitimate victims of horrible chronic disease or those who have been in motor vehicle accidents that have dismembered them for life with criminals?  Apparently we have a government that is so inept in addressing the real problem of criminal actions of people who just coincidentally happen to use a street chemical for recreational reasons to get stoned and wind up killing themselves because those street drugs brewed up in some foreign country or made in the USA by the street gangs for profit such as heroin or illegally imported fentanyl, and which has nothing to do with the prescription medications we use other than being derived from the same base substance of opium.  As usual, since our incapable government can't solve the real problem, instead such as the idea to take away our guns to stop evil people from killing, want to take away prescriptions that afford some quality of life for those unlucky enough to be victims of severe health conditions or victims of tragic motor vehicle accidents.  If the CDC or FDA doesn't have something better to do than try to rob us of the only keys to some quality of life, maybe it is time to fire all those scientists and administrators so that doctors can legitimately prescribe medications to patients without fear of losing their license, and we don't have to live in constant terror of wondering when our doctors are going to have to tell us they cannot give us the life saving medicines we need to continue to live out the rest of our lives in peace as best we can given our tragic health problems that have mandated use of such medicines without which we would all be in such horrific pain that it would be actually kinder just to gather us all together and have a firing squad pull those triggers for the government.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Dec/16/2017 at 5:19pm
So sorry Jeff things have been a bit crazy. Looking for your email can't find it but have so many coming in. I have a few Offers one, is Town hall with Senator Ted Cruz He has invited me to join the conversation about some of the issues that are happening. I intend to open up with this issue. funny I have a lot of my efforts in spam!
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You said it well Jeff!
Big thumbs up!
Our gov is out of there minds with greed and power!
It's time to do something NOW!

Sorry I don't know a lawyer,but if you find one I'd love to have his/her name.

Good luck!
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I’m afraid that we will never find a law firm willing to take this on. The government and big pharmaceutical companies have so much money to fight their own greediness no one could afford to take them on.

Trump has just dumped this mess into Kellyanne Conway’s lap. She has zero experience with opioids or chronic pain. It’s possible that one of CNN or MSNBC reporters could pick it up (forget Fox), but it’s such a complicated issue I don’t think it’s something they would run with.

It appears to me that our only hope is to go to Congressional leaders of our individual States. They care about votes—-and getting re-elected. They are the only ones who can hopefully understand what will happen to us if prescriptions written by our Drs aren’t filled and that failure to allow people who have never abused the system will only increase the problem further.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dee19 Quote  Post ReplyReply Direct Link To This Post Posted: Dec/22/2017 at 8:45am
Thank you, I am very afraid. I think the ultimate goal is to remove all pain meds from the market. If we can't get enough comments on the FDA request it will happen. It took 2,500 people to stop PROP in 2013. At that time they were trying to have pain medications be designated just for cancer or hospice. This year is so different from last year at this same time.
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dee19 Quote  Post ReplyReply Direct Link To This Post Posted: Dec/22/2017 at 9:04am
An article I found, I thought it was interesting.  http://reason.com/blog/2017/11/02/opioid-commission-mistakenly-blames-pain/amp
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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Well if they do then they will make me an alcoholic which is not what my faith suggests but I'll do what I have to do if the government decides they know better.  If it happens, I'll vote, protest, and seek out media outlets to tell my story and describe how we are tortured because our inept government can't enforce the already existing laws that would stop all the drug related deaths the media continues to hype up if they were diligently enforced.  Spread the word to every person you know, in real life, on Facebook, on this forum, by email, and most importantly, direct to your senators and representatives in congress.  I've even thought about moving to another country if this happens here.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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I agree with you. I am going to continue to fight through all of my available means. Thank you!
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jan/02/2018 at 5:35pm
I’m going to share a story from the perspective of a health care professional who had great trust in an elderly patient on opioids—-and this person prescribes to very few people these days. But, the elderly patient had been with this provider for years.

Without going into detail, something raised a red flag and the patient was tested for opioids in a urine sample. It was negative. Turns out the drugs weren’t being taken by her, but by someone else. And this is happening more and more. Drs don’t know who to trust anymore.

Those of us who are honest, have never given or sold our meds are deeply affected by this kind of behavior. It’s not only those getting the drugs off the street or off the internet that are causing these horrible problems for us. It’s happening in the private sector—-family and friends.

I have told my Dr that she’s got my full approval to test me at anytime. I’m going to fight with everything I have to stop the crap being done to us who have never abused the system. I hope I WILL be tested. I refuse to be taken off “one” of the only thing that gets me (barely) through the day.

It’s NOT our health care providers fault for this mess. People they’ve trusted are turning on them. AND US.


Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Jan/03/2018 at 3:05am
I know every time I see my Dr they ask if I want a lower dose of my narcotic meds and I can't understand why they keep asking this as if I have a choice to be on these pain meds while my spine is crumbling away with degenerative discs and facet nerve pain. 

I feel really uncomfortable and they say things like these meds are really addictive and yet my Pain Management Dr. reassures my Family Dr. that these meds are acceptable. The Doctors are being bullied by the political system and they have no right to bully Drs. 

I will have to go to the PM DR. if my Dr. retires as no family Dr these days wants the responsibility of ordering these narcotic meds unless okayed by a Pain Management Dr. 

I also agree I would be tested as well any time as well. I think my Dr has been abused by their patients and loses trust with those who are in intractable pain. I always send emails to the Government and they send it to the Health Minister and the Political Adviser so they tell me. 

We have to hold on o our rights, its very difficult when you're in pain all the time to fight like this and the added stress we don't need! 

Don't give up we stand with our strong voices of our pain management Dr to back us up. I would advise anyone to get into a hospital Pain Management program as they have a lot of clout. It's usually a six month waiting list although you can call regular to see if there's a cancellation to get in sooner. Never give up never surrender. Sara


DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing Neck-reverse Lordosis of c-spine C6-C7 with impingement, numb hand and sore outer elbow. Bursitis to both knees. RN
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: Jan/03/2018 at 8:13am
I am utterly horrified by all this! You all need to fight this mistrust and what's frankly cruelty, when they take away opioids which are our only way of getting through the day! I can't believe it's happening! I wish you all the luck in the world!
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Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Denny Quote  Post ReplyReply Direct Link To This Post Posted: Jan/04/2018 at 9:05pm
Part of the blame is the state of the economy.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Jan/06/2018 at 1:35am
The economy in the US is roaring.  The stock market is up nearly 20% in the last 12 months, unemployment is near a 10 year low, and GDP gross domestic product is over 3% now.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Denny Quote  Post ReplyReply Direct Link To This Post Posted: Jan/08/2018 at 11:00am
And yet the poor still suffer.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jan/08/2018 at 10:51pm
Yes. Political gain has now left us to wake up every day wondering if we can get any help with needed drugs and now legalized marijuana. Pathetic.

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My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brokenglass Quote  Post ReplyReply Direct Link To This Post Posted: Jan/20/2018 at 4:31pm
OK I Just wrote an important reply and now it s gone?? Oh well let me shorten it up the National Pain Report Has a very Important article. Please Read there is only a two month time frame involved. The house Committee members are considering amending HB 2310. Please read this state legislators have recognized the need to protect the families they serve by introducing HB 2310/SB 6147.I am calling on all the smart political people of the group to jump in and help us to take action. I understand that we are suffering and are carrying this heavy pain around. I have been so focused on this fight that I had forgotten about my own issues, and as of today my prescription is gone!! and I had changed insurance and Primary. I had found a Pain management but can't get in until 24th! Its crazy!!I hope I made sense as my pain is overwhelming.     
Denise
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