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FINALLY, relief!!

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Booger54 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Booger54 Quote  Post ReplyReply Direct Link To This Post Topic: FINALLY, relief!!
    Posted: Oct/20/2017 at 1:55pm
Finally, a good pain specialist!!
  I went to see a new PS Tuesday, 10/17/2017, and he is fabulous. At 70 years old, he is a former neurosurgeon turned pain management specialist. He understands pain and its transmission, and also what chronic pain can do to someone's life. He did a full neurological on me, went through my medical history, and prescribed for me.
  For the first time in nearly a year, I am at a "manageable" level of pain (1,2,or 3 on the 1 - 10 scale). I've been running at a pain level of about 2 but, of course, I can drive that up by my actions during the day if I'm not careful. We who have suffered from chronic pain for any great length of time know that we will never be out of pain, but just need to have it at a "tolerable" level to function. Nor would I want to be out of pain, as that can lead to damaging oneself further. I'm on a minimal dosage (2) 30 mg. MS immediate release per day, at my request. He would have given me three, but I told him that I wanted to start low and see how that worked, and that I don't want to be "addicted" to it if I can avoid it. He agreed and I can have that dosage altered, if necessary, when I see him in two weeks. It is wonderful to be back to some semblance of real life!!
  The first thing I did after the initial pill kicked in was to hop on my stationary (upright) bicycle and get 20 minutes in. That is my daily exercise routine, only it was 1 1/2 to 3 hours per day previously. Yesterday was about 45 minutes and today will be an hour or more. But first, I'm cleaning my apartment which needs it desperately!
  Damned! It is so good to be "Back in the saddle again"!! I wish this for all of you out there in Chronic Pain Land...Tim
 
P.S. I cooked my first meal in nearly a year last evening, Chicken Picatta over a bed of angel hair pasta, after living on sandwiches and microwave garbage for nearly a year...T
 
"I'm as mad as hell and I'm not going to take it anymore"
Peter Finch - movie "Network"
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Oct/20/2017 at 2:27pm
What a fantastic post!!

I am thrilled for you Tim. The complete opposite is happening to so many people trying to live with chronic pain. Thank goodness you found someone who understands and is willing to help. Enjoy yourself, but be careful overdoing
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Booger54 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Booger54 Quote  Post ReplyReply Direct Link To This Post Posted: Oct/21/2017 at 11:23am
Thank you Baily! It's been a long time coming. After what I've gone through in the last years, I understand exactly what others are going through. In fact, I thought I was on my way out, but I kept searching, and it paid off.
I'm being very careful, as I have always had a "healthy fear" of what these medications can do, which is why I've started at such a low dose. I can see now that it will have to be raised just slightly, but I don't want to go further. I also have to watch what I do and "listen" to my body when it tells me I'm pushing a bit too hard. It's just soooo good to feel human again.
I do wish this for everyone who is experiencing the lessening and perhaps losing their medication when they already suffer so much. Along with that I'll say: Keep searching for a good doctor/pain specialist - don't give up!
My best to all of you...Tim
"I'm as mad as hell and I'm not going to take it anymore"
Peter Finch - movie "Network"
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Quaver View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: Nov/06/2017 at 12:05pm
Hi Tim,

I am SO pleased to hear how much better you're feeling! That's made my day! "All" we need is one medic who looks at us and actually sees us and who understands what chronic pain does to a person. You must feel liberated and over the moon with relief! Don't push yourself too much and build the exercise up gradually. I think this calls for a celebration! champagne
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Booger54 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Booger54 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/07/2017 at 11:25am
Yes, Quaver. In the U.S. its' become much more difficult to find a doctor, even a pain specialist, who will prescribe. They are all afraid of losing their license to practice - their livelihood. It really is incredible how the general attitude towards prescription opiates, especially from those in government, has put them in the same category as street heroin. They don't seem to realize at all that these medications, for those of us who suffer from chronic pain, are more like insulin for diabetics. The attitude resembles more an hysteria than reasoned opinion.
Also, aside from my exercising, I've gone back to my volunteering at the local library one day per week for about 1 1/2 to 2 1/2 hours at a time. And cooking! For the first time in nearly a year, I'm cooking good meals instead of living on sandwiches and microwave junk. It feels so good to be doing something productive with my life...Tim
"I'm as mad as hell and I'm not going to take it anymore"
Peter Finch - movie "Network"
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Dee19 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dee19 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/29/2017 at 12:59pm
Hi I am so happy you have found a pain management specialist. I am looking for one for my husband. He has multiple problems. His pain doctor has decided he is placing all of his pain patients on Suboxone. The thought terrifies my husband and I. We can't find any pain management doctors in our area willing to take a chance on a stranger so he stays with his doctor. His medication has been reduced by 70% however I see others who have been cut 100% so I guess I shouldn't complain.
I saw a woman who needs 4 to 6 percocet a month. Her doctor dropped her after 10 years, same dose, no problems.
I have written to Congress, Senators, the president, celebreties, trying to find someone to understand what is happening to chroni pain patients as well as veterans who are receiving no pain relief at all.
Does anyone know of a caring pain management doctor in the MD, VA Washington DC area?
I really appreciate any advice. 
Thank you, Dee
Ankloysing Spond = AS Osteoarthritis of knees and spine, significant effacement of CSF, bilateral Foraminal stenosis, nerve root impingement, knees bone in bone torn meniscus, DDD, lumboscoliosis
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Nov/29/2017 at 2:24pm
Dee,

I also have ankylosing spondylitis and suffer from chronic severe pain as it got to my spinal cord and caused permanent damage.  I'd like to know what your response has been from the government and celebrities and I'd like to join you in your campaign to stop this government pressure against doctors to drop patients.  I want to join your fight and have already done something similar to my senators and congressmen.

Jeff
Ankylosing spondylitis & osteoporosis -> compression fractures -> facet & ligamentum flavum hypertrophy-> stenosis -> spinal cord & nerve root compression -> cervical myelopathy & radiculopathy -> bruise & deformation of my spinal cord -> incomplete spinal cord injury -> postlaminectomy syndrome of cervical region. Cervical laminectomy & fusion decompressed my cord but I now have severe chronic pain. Pain meds = Oxycontin, Percocet, Lyrica, Soma, Cymbalta, Voltaren Gel, & Ketamine pain cream. 11 surgeries including 5 orthopedic & 1 neurosurgery.

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Edie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Edie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/08/2017 at 10:35pm
I am very happy for you. It is always nice to hear about somebody who has been able to get some pain relief. I hope it will continue to be so. Enjoy your exercise, and your new meals. These will help to makes things a lot better.
Chronic pain throughout the spine caused by osteoarthritis (DDD). Started at neck, spread to thoracic, and lately to lumbar area. Most of my spine is affected by bulges, disc height loss and dehydration, bone spurs, annular tears, foraminal stenosis, probable nerve impingement, and degeneration at end plates and facets.

The disease extends from Cervical C2-3 to C7-T1. Thoracic T4 to T10.
Lumbar T12-L1 to L5-S1.
It is all non operable.

Other conditions
TKR R Knee.
Torn ACL, MCL L knee,
Pain on legs and calves
Deep vein thrombosis
Migraine headaches
Painful spots all over scalp
COPD
Hypertension
Chronic Hyperventilation. Caused by anxiety or stress
Chronic depression and insomnia
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Quaver View Drop Down
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Joined: Nov/23/2010
Location: West London UK
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: 9 hrs 17 mins ago at 10:33am
I wish all of you every success in your campaign to stop people like us being treated as junkies. As I've said before I have a vested interest, as what is happening in the US is usually what the UK is about to get. It even applies to your weather to an extent!

I'm on a Fentanyl 37.5 patch, plus 10 mg of oxycodone. I sometimes need more oxycodone. Fentanyl gives one a horrendous withdrawal, which I experienced when I dropped the dose post surgery. I also had it when I stupidly only took half the backing off my patch!! As I cover it with a Tegaderm dressing, to ensure it stays on, I didn't realise! I thought it felt like Fentanyl withdrawal but as I hadn't lowered my dose I thought it must be a virus. I felt such an idiot when I removed the patch after the usual 72 hours and realised what I'd done!

So anyway, I dread to think what it would be like to come off it completely. That would of course be coupled with awful pain. I just can't believe that a civilised country, in the 21st century, can condemn those unfortunates, who are already dealing with chronic pain, to extreme and/or  crippling pain and horrible withdrawal symptoms! It beggars belief! In my own case I am allergic to all anti inflammatories, so who knows what would happen to me and to my life!
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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