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Action Needed - Thunderclap Campaign

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eileenbunny View Drop Down
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Post Options Post Options   Quote eileenbunny Quote  Post ReplyReply Direct Link To This Post Topic: Action Needed - Thunderclap Campaign
    Posted: Mar/13/2018 at 5:09pm
Hi everyone, as you know, or maybe not since I haven't been so active around here, I've been working a bit for change in DC.  We have a real opportunity here to get a bipartisan bill passed that will fund new treatments for pain management that will really help us.  Of course it's all tied to the opioid crisis, but this bill means real money for real research for real treatments and this bill is gaining momentum. So far 19 congress people have signed on, 13 since the beginning of March!  

You may be thinking "I want to know more" or "that's great, but what can I do?"

  • You can read about the bill here: https://www.congress.gov/bill/115th-congress/house-bill/4733/text or here: https://www.congress.gov/bill/115th-congress/senate-bill/2260
  • You can send a letter to your representatives here: http://headacheadvocacy.org/ahda/home?0
  • You can encourage others to send a letter to their representatives to support or co-sponsor this bill.
  • Most importantly you can tell others about this by joining the Thunderclap campaign here: https://www.thunderclap.it/projects/68879-stop-the-pain-opioid-crisis If you don't know what a Thunderclap campaign is, basically it just means that you sign on and approve the campaign to post a message to your social media accounts.  The message is posted to all social media accounts that have signed on at the designated time, basically flooding social media with a single message.  If enough people have signed on it can make a big impact.  The Thunderclap date for this campaign is March 20th at 7pm eastern, so that means that the pre-determined message would be posted to your FB, Twitter or whatever on that date at that time by this program on your behalf.  You don't have to remember or anything.

Please let me know if you have any questions.

- Eileen
Chronic daily headache without real designation resulting from severe meningitis

Non-hodkins lymphoma survivor since 2003
Ruptured disk at C5-C6
Inferior alveolar nerve damage
Depression, PTSD with dissociative tendencies
I also have some yet to be diagnosed immune deficiency that is causing fatigue and severe joint pain.
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Bailey View Drop Down
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Post Options Post Options   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Mar/13/2018 at 6:48pm
Thanks Eileen
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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eileenbunny View Drop Down
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Post Options Post Options   Quote eileenbunny Quote  Post ReplyReply Direct Link To This Post Posted: Mar/14/2018 at 4:47pm
I forgot to note that your stories were shared with some members of congress and this may have helped sway some of their decisions to sign on to the bill.  Thank you for making a difference by sharing.  I know that you do so to directly support others with pain, but my hope is that sharing them in the broader sense will offer that support by bringing new treatments and more awareness for chronic pain.
Chronic daily headache without real designation resulting from severe meningitis

Non-hodkins lymphoma survivor since 2003
Ruptured disk at C5-C6
Inferior alveolar nerve damage
Depression, PTSD with dissociative tendencies
I also have some yet to be diagnosed immune deficiency that is causing fatigue and severe joint pain.
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Stevie View Drop Down
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Post Options Post Options   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Mar/15/2018 at 9:38am
Thank you Eileen!!

There’s nothing more important currently than research done immediately for safe and effective drugs and/or other alternatives to treat chronic pain. I’m hoping that our site is and has been noticed by everyone involved in this process as we ARE the “faces of pain”, and all any of us want is to be free of pain without having to carry the stigma of being “opioid dependent “.

I will be reading the links and this post will be pinned to stay on top in this Forum and bumped up frequently.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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tkay View Drop Down
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Mar/17/2018 at 10:00pm
Eileen,
It is great that you are working so hard to help yourself, those here and in our country.

thank you for all you are doing and will do!
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Jeff View Drop Down
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Post Options Post Options   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Mar/19/2018 at 12:22am
Great that they are funding research, but please ask them to stop pressuring doctors to take away our medicines in the mean time.  Our quality if life is unfortunately based on the ability to neuralize the pain as best we can with existing meds.  Until we have proven alternatives, we don't need opiate prescribing to be forced to end due to the actions of those kids and drug dealers selling non prescription opiates.  We are already suffering enough as it is.  Look at our list of problems in our signatures.

In addition to my signature list, I have had a hip replacement and need a knee replacement, and both of my feet are also worn out.  As a Mayo clinic trained MD told me, my body is completely worn out from arthritis and every major damage is damaged almost beyond repair.  Plus I still have severe nerve root compression in my cervical spine that is inoperable.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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