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SI Joint acute and nerve pain flare ups

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Brikey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brikey Quote  Post ReplyReply Direct Link To This Post Topic: SI Joint acute and nerve pain flare ups
    Posted: Jun/06/2018 at 9:06pm
Hi, I'm new here.  Smile  Also, Confused and Dead...

I have an SI Joint injury which has caused severe, intractable pain since 2011. Before that, I had chronic lower back pain for decades which I was able to ignore (since none of the docs I went to helped), but got one set of lumbar facet steroid injections, which helped.)  I was mainly bedridden until last year, when I went on Cymbalta.  It took care of about 95% of my pain.  But, 5% of way too much still leaves way too much.  

I have been able to work, but I started full time in Aug, '17 and am down to about 9 hrs/week, due to it making my pain worse.  I work weekends (very short shifts) and M - W, I am sick and miserable from it.  I'm barely returning to the living, and have to go right back to work.  I can't really do anything except rest my back with my legs up, or it creates pain flares.  Working has made my joint problem worse.  I had 3 weeks off recently, and found that, at the end of the 3 weeks, my baseline pain was much worse than it was, just before starting my job, and notably, my SI Joint area was filled with constant burning pain, which it used to only have, sometimes.

I am seeking new diagnoses, because my pain has gradually become chronic fatigue and maybe something else, and because I suspect fluoroquinolone toxicity as a cause.  I have addressed the fatigue with fair success with a number of supplements. 

My question for you all is that, even as I have stemmed the painful exhaustion I get from my little weekend shifts at work with CoQ10, D-Ribose, L Carnitine, and some other things, I have found something else developing, and I'm not sure what to think of it. 

This past week, starting Monday, through Tuesday, was the worst example of what I mean, so far. On top of my usual flare-up of nerve pain and fatigue (which I still get, just not so badly), I had flu-ish symptoms, without any stomach or respiratory aspects. It was just the skin hurting, everywhere, intensely, and a feeling of heat in my head, with headache.  Migraine meds helped the headache.  Nothing helped the skin pain or feverish feeling.  I took some Gabapentin one day, Lyrica the next (more than usual), MMJ, and Tramadol, and slept all day M-Wed. 

Also, I used to get back pain "seize-ups", when I'd suddenly throw my back out, and fall to the ground, if there was nothing to hold on to.  Someone would have to bring me my cane, or, once, when I was home alone, I was able to inch over to something, pull myself up, and then push off of one piece of furniture to another, and make my way to the closet with the cane in it.  That hasn't happened in 3 years, until Monday, the day with the feverishness.  The feverishness came first, for most of the day.  I had to use my cane for a day, and today, I'm able to sort of creep around without it, but I ended up sleeping most of the day, because of the extra pain.

I've read that flu-ish symptoms can be from Fibro, but I don't have much generalized pain.  I mean, because it's nerve pain, it refers around, and over time, it has become sort of generalized from the thighs to the mid-back, I think of that more as referring pain and soreness.  I do have neck pain, but I lie around a lot, so that seems likely to be from that.

Sound familiar?  Any ideas?  

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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Jun/07/2018 at 4:00am
Hi Brikey,

It sounds, to my never had any medical training head, like you might have a couple things going on. I don’t have any thoughts on what it might be, however keeping detailed notes on symptoms and timings can be very helpful to your docs. Have you made an appointment to discuss the new skin pain? Hopefully someone has experienced something like this, see your post and can offer a little insight for you.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/07/2018 at 10:20am
Hi Brikey and welcome here

I really feel that you need to go back to square one and start with your overall general health. Have a full panel of labs done, including being tested for inflammation with a Sed rate and/or CRP. Get tested for autoimmune diseases and even Valley Fever which is so common in AZ. Even Lyme disease —-but get these multiple issues sorted out. I don’t feel that all of your symptoms are coming from back issues.

FM is certainly a possibility, but in order to rule it in, other medical conditions need to be ruled out. I wish I had more to offer but I honestly believe that this is the way to start the process. Best wishes and again, welcome here!

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Brikey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Brikey Quote  Post ReplyReply Direct Link To This Post Posted: Jun/07/2018 at 12:09pm
Thanks.  I'm sure  the new specialists (I have 3 in the works) will check the Sed rate and CRP again.  The last time, they were normal.  But, I'll be sure to ask.  The symptoms only occur in concert with the flare-up pain from overactivity, though.  They subside as the pain subsides.
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/07/2018 at 5:37pm
When was your last MRI? I’m wondering if you’ve developed other lumbar problems over time.

I have had severe stenosis and am fused from L2-S2. I’ve just recently had a return of the severe sciatica type pain going down right buttock and hip when walking. It too calms down with rest. I’m going back to the OS for X-rays and possible MRI. Small doses of Gabapentin and MMJ take the edge off, but I sure couldn’t be working right now.

I hope you get some answers from your medical team. Please keep us posted.


Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Jeff View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: Jun/09/2018 at 12:07am
What does MMJ really help with Stevie?  Neuropathic or noiceptive type pain?

Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/09/2018 at 10:29am
The answer is both Jeff. It would be presumptuous of me to even begin to explain the complexity of how Cannabis works, so I highly recommend the following book to you and anyone who wishes to learn and understand this natural drug.

“Cannabis Revealed” by Bonni Goldstein,MD. She gives an incredible amount of information about the Endocannabinoid System and the cannabinoid receptors found throughout the brain and body. Fascinating stuff!! Thank you to Bailey for putting me onto this book.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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