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tkay's Story

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Post Options Post Options   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Feb/02/2018 at 6:26pm
I’m unsure if I could go through the puppy stage again—-remember those days well—-but the crate is a really good idea, especially when you aren’t home to supervise!!! We had a wonderful Welsh Springer spaniel who just hated car trips and I can’t even tell you how many times we did cross country trips with her. It didn’t get better even with tranquilizers from the Vet. But she was the love of my life and the smartest dog we ever had.

Here’s hoping that you and Annie have many wonderful, and less painful years together.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Mar/27/2018 at 3:10pm
Annie did great in the car. She laid on the back seat with her bed on it and we stopped often giving her time to stretch and sniff.

She loves our fenced backyard. She entertains herself. She is stubborn to come when called, which doesn't amuse my husband any as he is impatient about that. I let her stay out as long as she likes I check on her. She amuses her own self well.

Today I see Dr. A. He has an associate now who works in his office. I have been going to him since 2006 or so. I am glad to not have to change. I had blood work done last week so I am going to find out how things are today. I am sure my liver enzymes are a bit elevated as they always are because of the medications I use.

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Post Options Post Options   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Mar/28/2018 at 9:32am
Good luck at the appointment today Tammie. It’s great to know that Annie has properly taken over your hearts and fits in so well.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Apr/23/2018 at 3:46pm
My liver and pancreatic enzymes were a bit elevated. My cholesterol was great, never has been a problem before. Iron Saturation and potassium are low.
I saw Dr. A, we talked about my eating habits and how important it is to make changes and follow through to lose some weight.

After leaving I decided I am going to do this. So since then I have been watching my diet get better and better and I have lost 10 lbs.

I have cut out all the junk I had been eating, started eating more fruits and vegetables. Stopped nighttime snacking.

It sure makes a difference in how I feel. Since cutting out unnecessary sugar out of my diet my pain IS lower. My husband isn't real encouraging.

I am hoping to lose much more but I know this will be a journey that is going to be a bit slow. Im okay with that.

I have an app on my cell phone that I use that has a coach, I record my weight, food intake, and I can read articles about losing weight and the psychology behind losing weight.

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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: May/13/2018 at 10:51pm
My job coaching hours were cut at the beginning of the year. I am home more than I am used to.

I have taken in some sewing projects. I will share that in my other thread.

I have been having problems getting my medication refilled. I went to the doctor in March and the staff told me the doctor sent the script to the pharmacy. I had picked all my medication up the week before and it was not in the bag. It was never received.

I have since called several times. I am not sure if staff is not giving the message to Dr. A or what.

Can Lyrica be done electronically or do I have to present a prescription written my by doctor?

Anyway I am frustrated with the pain I have been in. I have gotten so used to being in pain I just do what I need to do, either rest, work or sew. I really dont have to go into a huge flare up.


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Post Options Post Options   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: May/14/2018 at 4:14am
Hi Tammie,

I’m sorry you’re having trouble getting your meds. It sounds as though something or someone is being obstructive. In the UK Lyrica isn’t a controlled drug, but it will apparently become one soon. It’s generally becoming more difficult to get pain meds here too. On a more positive note well done for losing 10 pounds! I’m so glad you’re feeling better for it too! That’s marvellous news! I do hope you get your prescription meds ASAP
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Post Options Post Options   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: May/14/2018 at 10:57am
Yes, Lyrica can be sent in electronically—at least in my State. But things are changing so fast anymore no one can keep up with the changes.

Your best bet may be to have your pharmacy fax the request to Dr A’s office for refill.

As an aside here, I recently read that Gabapentin is now being abused by addicts who take large doses of it to “get high” because it’s cheap. I’m so disgusted by this. It’s the only thing I have for severe back pain other than MMJ because I can’t afford Lyrica even with my insurance. We live at a time when none of us know what our future holds.

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Post Options Post Options   Quote Quaver Quote  Post ReplyReply Direct Link To This Post Posted: May/14/2018 at 11:30am
Oh for goodness sake! I really hope this new abuse doesn't make things even worse for CP patients!
PLEASE DONATE TO CHRONIC PAIN SITE! SO THAT WE CAN CONTINUE TO HELP CHRONIC PAIN SUFFERERS


CPS SUPPORT BRITISH & UK RESIDENT
Severe chronic pain in lower back. Lumbar Spinal Stenosis, Scoliosis, DDD. Hypermobility in ankles caused most problems. Bilateral trochanteric bursitis Osteoarthritis in spine, wrists and hands. Golfer's Elbow. L4-L5 L5-S1 spinal fusion plus cage support and titanium spacers April 2008. Nov 2010, accident in shower caused compression fracture of L2. Missed by A&E. Functional lumbar spine stenosis from herniated disc at L3/L4 July 2015 XLIF discectomy plus XL-TDR very successful! Miraculous improvement in mobility! Hashimoto's syndrome, Depression, High Blood pressure, Fibromyalgia, Raynaud's Syndrome.
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: May/30/2018 at 8:34pm
I made the final call to my doctor soon after making the post here. It took four times, it is quite possible it was sent to the wrong pharmacy but who knows. It went through the last time I spoke with the Dr.s staff person over the phone.

It is very frustrating for me to hear that there are people abusing lyrica. I can honestly say the first week of taking I felt high, euphoric, giggly. If that is what someone wants to feel all the time oh geez. I couldnt control what I laughed about. :/

I am still losing weight. It is getting a bit more difficult as I am not active exercise wise. I need to get some walking in. I do however go over my set amount of walking everyday via the weight loss program I am following.
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Post Options Post Options   Quote Jeff Quote  Post ReplyReply Direct Link To This Post Posted: May/30/2018 at 8:52pm
I HATED starting Lyrica and still don't like it.  I saw the walls shimmer and a bat above my office door and though I was losing my mind, but after 72 hours it all settled out and in the slow dose increases after that up to my current dose of 600 mg a day, I didn't have any side effects.  I think it has messed with my memory but if I don't take it regularly, I feel like I'm in a lightning storm and its worse than sticking your finger in a light socket.  I rarely if ever am late a dose for that reason, because those shocks feel like electrocution and I am one who touched the inside of an old CRT TV once hitting the 20,000 V gun and lived to tell about it (knocked me across the room and out and burned off the end of my thumb back when I was 16).  Never messed with a TV after that.
Ankylosing spondylitis resulting in fusion of entire cervical, thoracic, lumbar, and SI joints, osteoporosis, 5 compression fractures, severe stenosis of spinal cord & nerve root compression, cervical myelopathy, radiculopathy, bruise & permanent deformation of spinal cord, incomplete spinal cord injury, postlaminectomy syndrome of cervical region, chronic nerve and orthopedic severe pain, and bilateral carpal tunnel. Asthma, GERD, high blood pressure, high tryglycrides, diverticulosis, recurrent pneumonia, anemia, hypertension, chronic dry eye and mouth. Need hip & knee replacement and fusion of both feet. Already had 11 surgeries including 5 orthopedic & 1 neurosurgery.

Please donate to help Chronicpainsite.com continue to help others.
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Post Options Post Options   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: May/31/2018 at 10:01am
When I go to Dr. I get a 90 day supply and then get repeats as it costs money for a Dr. to refill on the phone about $10. I did feel spaced out once. I take no more than 25 mg a day as I get puffy all over. The weight gain is terrible for me anyway.
I hope you get your meds soon. It's important to stop a high dose of Lyrica quickly. It's supposed to be tapered off.
Take care.
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Jun/01/2018 at 9:07pm
Jeff I usually get those shock side effects when I forget to take my anti depressant for a few days. It is terrible.

I will be careful in watching when to refill my med. I have my other meds on auto refill at CVS.

I will have to find out if I can get 90 day supply of Lyrica once I am done paying the insurance deductible of 3,800.00. We finally got an over amount of Health Savings put away. yay!

Sara
The doctor has to pay 10.00 to do refills over the phone or you have to pay him?

I have been able to keep the 12 lbs off. In some of my clothing I am a size smaller others my they are just big. I have bought several yards of fabric to make some summer dresses. I am glad to lose weight but not glad to have to pay for the new clothing(even though it is nice to get new clothes).

we are relaxing tonight. It rained a bit.
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Aug/14/2018 at 9:23am
I am continuing to do ok.

I ended up seeing an orthopedic doctor in July.
He diagnosis Iliotibal band syndrome.
My hip has been so stiff that getting up from a sitting position was
giving me pain and I had been stiff! He suggested seeing a physical therapist.
I have been stretching and seeing the chiropractor again.
Slowly this is resolving.

We purchased a new vehicle that is a GM product called the
Trax. It is easier for me to get out of. It’s taking me a long time to get used to as it is small
In the seating area .
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Post Options Post Options   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Aug/17/2018 at 9:58pm
Hi Tammie. I thought I would post before we won't be able to anymore. I would see a Physiotherapist and if they have a Biolazer get that done. I have a great PT that does a manual release and the laser and had such relief of pain in my shoulder. I have complete tear of a bicep ligament but this PT is helpful also the Chiropractor only does the Biolazer treatment. I would recommend this treatment if they have the laser but the manual release is good by the PT.
Well all the best. Take care Sara
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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Post Options Post Options   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Aug/18/2018 at 4:16pm
HI Sara thank you for the recommendation! I will look into this.
I am finding now that I have been stretching the area that has been stiff and painful I have other places that hurt and are stiff! Always something.

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Post Options Post Options   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Aug/19/2018 at 11:33am
Biofreeze is now available in Canada. Used to be just USA and it's my new best friend. I can only buy it at Physiotherapist office and just love it for my joints. I'm too sensitive in my back to put it  but it burns. freezes it's amazing stuff for joints.   Biofreeze and Bioflex lazer my new best friends. well see you. 
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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