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legs and arms feel like they are on fire everyday

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andy1976 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote andy1976 Quote  Post ReplyReply Direct Link To This Post Topic: legs and arms feel like they are on fire everyday
    Posted: Jun/27/2013 at 3:41am
((MALE 37 YEAR OLD)) Hi i am waking up everyday in hell, burning in my arms and legs and pins and needles. i keep thinking that it is something in my blood because it feels like someone has injected poison or something into them.
I have noticed that it is getting worse and worse and i do not no were to turn with it because my doctors have not got a clue. I also have friends and family telling me to pull myself together and that it is all in my head. I no it is not in my head you can not fake feeling like someone has set you on fire.
I have been taking time off work and having to just lie still on my bed with shorts on stretched out to get some kind of relief.
I have had  fasting blood tests to check for B12 and sugar levels etc, mri scan on my back which they said was clear.
I had a week last week were it eased a little and i thought i am getting better and i returned to work but now its back worse and everyone says i am just being stupid. unless someone has this how can they no what i am going through. I have read up a bit online and i now take it that it is my nerves giving me all this trouble.
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Stevie View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/27/2013 at 7:26am
Hi Andy and welcome,

Well, we know this isn't in your head and it needs further investigation.  Does this burning go away durig the day after you are up, or is it with you all day long?  Do you have any pain anywhere else or is it only in your arms and legs?  Is there anything you can do to make it better?

Has your Dr suggested something like Gabapentin or Lyrica that may help with this nerve pain until they can get you a diagnosis?   I have to say that having this in both upper and lower extremities is not something that we hear about.  You should probably have nerve conduction studies done. 

I hope that your GP is continuing to send you to Specialists----and is testing you for autoimmune diseases.  Have you been to a Neurologist?  Keep letting us know a bit more about what is going on, and again we welcome you here to our site.  Stevie

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Spinal Fusions L5-S1 and L4-L5. Recent changes now with diagnosis of Lumbar Stenosis with neurogenic claudication. To have multi-levl posterior fusion with laminectomy and decompression of L2-3 L3-4 and fusion and revision of L4-5 L5-1 with instrumentation. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
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Post Options Post Options   Thanks (1) Thanks(1)   Quote pete81241 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/27/2013 at 8:22am
welcome andy and having had this myself i know its something that the head doesnt cause. 
stevies comments on what docs to see are excellent. 
i get this stuff from pressure on nerves in the lower neck. but as bad as it can be it can easily be eliminated by finding the right exercise. this will sound crazy but one day i was trying to clean a broiler pan and i was using sanding paper and putting a lot of force onto the pan with the fingers. you have to do it for a long time. i also find polishing a car helps a lot. i never found pills that helped....ice at night was pretty good too.
pressure on nerves in neck might be a cause for you but you need to rule out other stuff so start seeing the docs.
i sure hope you start getting relief...........pal pete
7 spine surgeries for neck, leg and back pain caused by stenosis,DDD, facet hypertrophy and ligamentum flavum. spinal cord stimulator. both hips replaced. surgery on pituitary and pancreas tumors. arthritis. ga
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Post Options Post Options   Thanks (0) Thanks(0)   Quote andy1976 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 4:34am
The burning is there from the minute i wake up till i go to bed at night, i have waited that long in pain now i am just fed up and every new day feels like a nightmare. This has just came out of the blue and has scared me more than anything.
The pain feels like a burn on the skin but with nothing to show on the outside, if i cross my legs in bed or lie on my arms  i get woke up with burning and a pins and needles. I no if you lie on a body part in bed that everyone gets a numb feeling but this is worse by a 100 times.
I am waiting that long for any further appointments that it is driving me crazy, could a blood flow problem not be causing this to the nerves??
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Nikoma View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Nikoma Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 5:00am
I'm not sure about a blood flow problem but I do know that sometimes if your muscles are tight say in your neck or upper back, that can cause nerves to get pinched, or can just put pressure on them, making you uncomfortable.  You could also have something in your spine out of alignment.  If the docs can't find anything, maybe go have a visit with a chiropractor?  They may be able to help.

You should get checked for Fibromyalgia, it's difficult to diagnose but I've a friend who has it and she has explained that it feels like what you're going through.  Or do a quick check on google for unexplained nerve pain.  you never know what you might find, though you've probably already done that.

If the doctor's are telling you that there's nothing wrong with you, find a new doctor.  It took me moving 3 hours away from my hometown to finally find doctor's who would LOOK.  I know your frustration but just try to remember that help is out there.  You just may have to look harder for it.  I hope you can find answers soon.

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“Therefore, let there be beauty and strength, power and compassion, honor and humility, mirth and reverence within you.” ― Doreen Valiente --- Diagnosis: Endometriosis. PCOS. Major Depression. Inflamatory Autoimmune Disorder. Undifferentiated Spondyloarthropathy. Fibromyalgia. Dystonia. Reverse Cervical Lordosis. C1 twisted 1.5° to the left. Moderate to Severe Arthritis in L2, L3, L4 & L5, as well as S1, S2 & S3. Muscle and Nerve damage in right leg, permanent left ankle injury.
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 7:09am
I just looked at Nikoma's post to you and agree that you need to have Fibromyalgia ruled out.  In the meantime, unsure if you have had a trial of something like Lyrica, but you need to----it's used to treat nerve pain.  Gabapentin is another one that came out prior to lyrica and is much cheaper.  But, please ask your Dr about trying one of these medications.  Stevie

Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Recent changes now with diagnosis of Lumbar Stenosis with neurogenic claudication. To have multi-levl posterior fusion with laminectomy and decompression of L2-3 L3-4 and fusion and revision of L4-5 L5-1 with instrumentation. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote andy1976 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 4:19pm
Thank you so much for all your help. I am only 37 years old and feel like a old person, this has to be the most ridiculass thing you can get because it is so silent with nothing to show on your skin or in blood tests and makes you look like a ideat to everyone. i am getting sick of anyone i tell saying you are going crazy and it gets me worse. The only way to explain it to me is if you get a hair brush and rub it up and down your arm for a few minutes to then have that horrible skin burn feeling.
I keep thinking will i ever get some kind of ease, even if they could calm the heat down a little i would just live with it even if it does get me down.
I have suffered a few years with middle back pain mind but nothing has ever been found off a MRI scan and was put down to mussle damage and i have just lived on tramodol tablets for 7 years.
I think being a young lad going into the doctors that they just think i am a depressed young lad maybe drinking all day and just going over things. I went to the hospital walk in when it first happened and they kicked me out saying that nothing is wrong see your GP, I said i have seen a GP they were not doing much, or well i never went back thats for sure.
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 4:26pm
I hate to harp on this, but if blood tests and scans continue to come back negative, Fibromyalgia may be a possibility, and it can be treated and helped with the medications I mentioned above. 

Please, keep on looking for answers and if you feel that you are being ignored and not taken seriously by your GP, you may need to consider switching.  Here is a link that may help you with getting around the NHS:http://chronicpainsite.com/mb/forum_posts.asp?TID=5411&title=the-nhs-and-tips-on-coping-with-it  Stevie

Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Recent changes now with diagnosis of Lumbar Stenosis with neurogenic claudication. To have multi-levl posterior fusion with laminectomy and decompression of L2-3 L3-4 and fusion and revision of L4-5 L5-1 with instrumentation. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote andy1976 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 4:57pm
Stevie very good adviceThumbs Up
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Post Options Post Options   Thanks (1) Thanks(1)   Quote pete81241 Quote  Post ReplyReply Direct Link To This Post Posted: Jun/30/2013 at 6:56pm
andy , have you seen a good neurologist? a couple of other diseases to rule out would be LYME disease and MS. the lyme test would be a blood test. do you live in an area with deer tics?....the test for MS would be a MRI of the brain. this has bothered you for a very long time and it needs to be diagnosed.....pal pete
7 spine surgeries for neck, leg and back pain caused by stenosis,DDD, facet hypertrophy and ligamentum flavum. spinal cord stimulator. both hips replaced. surgery on pituitary and pancreas tumors. arthritis. ga
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Post Options Post Options   Thanks (0) Thanks(0)   Quote andy1976 Quote  Post ReplyReply Direct Link To This Post Posted: Jul/02/2013 at 8:06am
Hi Pete i live in the U.K Mate in the City so i am not near any animals apart from my gold fish LOL, Anyway Pete i am waiting to get an appointment to see a neurologist at the hospital and may get some type of help understanding it. It just feels like ages now trying to get in to see someone for this which has been 3 weeks today since the request was put in.
It will be a good thing to post on here when i do finally get some sort of answer and if i can help even one person having a terrible time then that will make me happy buddy.
Cheers
AndyWink
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Post Options Post Options   Thanks (1) Thanks(1)   Quote pete81241 Quote  Post ReplyReply Direct Link To This Post Posted: Jul/02/2013 at 8:19am
hey andy after 7 years its sure time for some answers....you pay taxes right? so time for some benefits. 
i live in an area where those ticks will just jump up on you and start eating away. the docs stay really busy treating the lyme disease. i had it several times.
i know your discomfort and just hope you can make some progress....pal pete
7 spine surgeries for neck, leg and back pain caused by stenosis,DDD, facet hypertrophy and ligamentum flavum. spinal cord stimulator. both hips replaced. surgery on pituitary and pancreas tumors. arthritis. ga
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Post Options Post Options   Thanks (0) Thanks(0)   Quote andy1976 Quote  Post ReplyReply Direct Link To This Post Posted: Jul/02/2013 at 10:51am
Pete all of that stuff under your posts, I have just noticed is that all of the things you have had done fella. Your like Rambo 1st blood LOL. Hope you ok now Marra or is it just living??
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jul/02/2013 at 11:13am
Hi Andy,

Thank you for putting up your AvatarBig smile  Is this a wedding photo? 

I wanted to tell you that I admire and appreciate your statement about helping even one person.  You will wind up helping MANY-----while the % of people who come onto our site don't necessarily post, they read.  And, knowledge it power. 

I truly hope you don't have to wait forever to see a Neurologist.  Stevie

Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Recent changes now with diagnosis of Lumbar Stenosis with neurogenic claudication. To have multi-levl posterior fusion with laminectomy and decompression of L2-3 L3-4 and fusion and revision of L4-5 L5-1 with instrumentation. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sido1948 Quote  Post ReplyReply Direct Link To This Post Posted: Aug/01/2013 at 1:41pm
Hi Andy,sympathise,about your problem,your second problem like me you live in the UK,and because of the savage cuts to health services the wheels turn slowly,i have peripheral neuropathy,which causes burning in my legs and in the butt,i have other problems associated with it,as yet no one has been able to say what's causing it,its the wait between appointments,that the main prob you have fight for everything ,don't be put off ,excessive alcohol can be a cause ,as well as trapped nerve,are you otherwise fit and healthy,have got any issues other than what you describe ,more info the better,Colin
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Post Options Post Options   Thanks (0) Thanks(0)   Quote pete81241 Quote  Post ReplyReply Direct Link To This Post Posted: Aug/01/2013 at 2:47pm
hi andy....just stopping by to say hello. i wish your health system worked faster for you. its terrible suffering and not knowing whats wrong. i know one thing i never would have had the surgeries i've had if i lived in the UK. i just hope you can get answers soon.....pal pete
7 spine surgeries for neck, leg and back pain caused by stenosis,DDD, facet hypertrophy and ligamentum flavum. spinal cord stimulator. both hips replaced. surgery on pituitary and pancreas tumors. arthritis. ga
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Post Options Post Options   Thanks (0) Thanks(0)   Quote crps slave Quote  Post ReplyReply Direct Link To This Post Posted: Aug/31/2013 at 5:20pm
Hi Andy
I can understand how frustrating this all can be especially when doctors can make a definate diagnosis.
A couple of years ago I was bitten by a dog on my right forearm, radial nerve was bruised which should have healed, but the pain kept increasing even though wound healed without any problems, I was diagnosed with Complex Regional pain syndrome after a few months. (there is no cure for this devil)

The pain I feel is always there never goes away its a burning pain, I get shooting pain up my limb, my skin colour changes from red to blue/purple, my limb is sensitive to light touch my joints are stiff and initiating movement is very difficult and causes incredible increase in pain and then a flare which could last from a couple of hours to days. I take Gabapentin (dose 3300mg per day) for this nerve pain, 
its not making the pain go away but it takes the edge of it.

About 4 months ago I started to get pain in my feet they now are bright red pretty much all the time, they hurt when I walk on them, even resting and even when sleeping, I have been told that the Complex Regional Pain has spread to my feet now, more than likely its going to end up being a whole body spread, I am
absolutely devasted, but I'm hanging in there for a cure (very soon I hope). I too feel like an old woman, sometimes I feel like my whole body is going to shut down on me.

If any of these things are happening to you then you may have what I have,
I see a pain specialist. (the doctor that diagnosed me was a neurologist and second opinion by an orthopedic doc.

I wish you all the best in the future (I really do hope you don't have same thing as me, but something that there is actually a cure for).

 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Aug/31/2013 at 6:29pm
Hi crps slave,
 
I'm so sorry to hear this horrible condition is spreading. I'm glad you found us and hope we can at the least, provide you with some support and understanding. I hope you'll start a thread of your own and tell us more about yourself and what treatments you've tried so far.
 
Thanks so much for posting to Andy and offering suggestions. We all try to help each other here. I wish you all the best and hope to get to know you better.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Merlin Quote  Post ReplyReply Direct Link To This Post Posted: Aug/31/2013 at 10:59pm
Hi Andy and CRPS Slave - welcome to our website where we can give you info and support - and we will validate you and no one is going to give you a hard time
 
The CPRS sounds as if your bodies have been attacked by and extra-corporal intelligence that does not wait to extricate you from your life here and whisk you away into a dark tunnel where weird creatures examine you
 
It sounds worse than that -
 
I didn't know if it had anything to do with Lyme Disease - we don't have tics in this part of the Australian Continent yet - but with climate change they might just hitch a ride
 
All the best to all the CPRS people - I only learned a little about Lyme disease on a DV doco recently - and I know there are more causes than tics to inflict you
 
Yeah - this is when I prefer the devil I know -
 
I am glad you have found us
 
Merlin (Australia)
Merlin
Severe Inoperable Lumbar Spinal Problems - both shoulders damaged
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