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A List of Resources for FM/MF

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envyjoy View Drop Down
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Joined: Oct/14/2008
Location: Ann Arbor, MI
Posts: 591
Post Options Post Options   Thanks (0) Thanks(0)   Quote envyjoy Quote  Post ReplyReply Direct Link To This Post Topic: A List of Resources for FM/MF
    Posted: Nov/04/2008 at 9:38am
National Health Institute
http://www.nih.gov/
Chronic Babe
http://www.chronicbabe.com/
Medline Plus
http://medlineplus.gov/
Fibro Hope
http://www.fibrohope.com/
Happy With Pain
http://www.happywithpain.com/
Household Chore Tips
http://www.fmscommunity.org/worktips.htm
But You Don't Look Sick
http://www.butyoudontlooksick.com Especially The Spoon Theory!!!! http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

I will be adding to this list as I come across more stuff (and get through this fog to remember more of them!!!)

Fibromyalgia (including), Polycystic Ovarian Syndrome, Pelvic Torsion, Bursitis of the hips, Depression, Anxiety, Insomnia, Irritable Bowel Syndrome, Lordosis, Restless Leg Syndrome, Tempromandibular Jaw, Reynaud's Phenomenon, Migraines, Carpaltunnel (right wrist), Radiculopathy + Sciatica.
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Nov/04/2008 at 9:59am
Envyjoy, I also want to thank you for your continued help and support to all of our FM members.
Also, for everyone who wants to learn more about the signs and symptoms of FM, please go to the top of the FM forum. Envyjoy did a superb job of listing these for us, and we have it posted there. Stevie

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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dyantis View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dyantis Quote  Post ReplyReply Direct Link To This Post Posted: Aug/08/2009 at 3:25pm
I had someone help me at the chronic pain center with my fibromyalgia .  He was a myofascial trigger point therapist, but I got some relief from his techniques. Very interesting and it's lasted tooTongue
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cgstar View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cgstar Quote  Post ReplyReply Direct Link To This Post Posted: Feb/24/2011 at 12:39pm
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tkay View Drop Down
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Location: Michigan
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Feb/24/2011 at 1:49pm
I had forgotten these were here! they are great resources to add to my personal list!
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sara1 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sara1 Quote  Post ReplyReply Direct Link To This Post Posted: Nov/15/2012 at 12:12am
bump
DDD of lumbar spine with sciatica to left leg and foot. all lumbar discs now herniated one central herniation with exiting nerve contact.Facet joint Hypertrophy RFA for pain relief
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cindylou_38 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cindylou_38 Quote  Post ReplyReply Direct Link To This Post Posted: Aug/10/2013 at 8:20am
Stevie the first link on fybro is not working. The John Hopkins neither.there is a new link for it.
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Stevie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/10/2013 at 9:05am
Thanks Rose.  The links have been removed.

If anyone finds a link to a good source for FM that isn't above, please post it, and I'll put it up in the above post:)

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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Bailey View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Aug/10/2013 at 3:23pm
Hope these work,
 
 
 
I found helpful information in both these sites.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Rocken Roni View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocken Roni Quote  Post ReplyReply Direct Link To This Post Posted: Aug/11/2013 at 3:19am
It is great to see these links posted as it helps us to better understand the issues these people go through. Thanks again.

Roni


Please donate to help Chronicpainsite.com continue to help others.

Until one has felt the Love of an animal,
a part of their Soul remains Unawakened.

Unknown

1st injured Feb, 1997. Was told it was "Soft Tissue" and sent back to work - no X-rays
Late 1997 attended 1st Rehab Program to strengthen back. Mid 98 PCP took me off work. Tried going back to work over the next couple years, mostly off work due to pain.
June 2000, met with OS for first time. Did MRI , damage was L5-S1 totally blown out. Surgery done Jan, 2001.
Another Rehab program late 2001, attempted to go back to work early 2002. Slipped on water, fell flat on back screw fusion broke.
Went to 3rd Rehab program summer 2002.
Oct 2003 - 2nd Surgery, due to broken screw, had to operate from the front.
No improvement. Attended 4th Rehab program in 2004, at time It was decided NO work.
March 2006, had 3rd Surgery, this time fusion and instrumentation from Si to L3.
June 2008 Surgeon finally admitted I had Failed Back Surgery.
August 2009 WCB Finally put me on Long Term Disability
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Jackie View Drop Down
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Location: Calgary alberta
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jackie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/12/2013 at 6:48pm
https://www.youtube.com/watch?v=jtc2JARVpPw            This might be helpful.I am looking for more recent information.
Jackie
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Jackie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jackie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/12/2013 at 6:54pm
This may also be interesting,https://www.youtube.com/watch?v=Ei8LbUDkQno
Jackie
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Jackie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jackie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/14/2013 at 9:48pm
Hi, I found this great site for our Canadian members. I am going to see her so will keep you posted.http://www.fmcfs.ca/QAStein.html
Jackie
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Rocken Roni View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rocken Roni Quote  Post ReplyReply Direct Link To This Post Posted: Aug/15/2013 at 4:57am
Just checking this site out, Looks pretty
interesting. Will check it out more later.

Roni


Please donate to help Chronicpainsite.com continue to help others.

Until one has felt the Love of an animal,
a part of their Soul remains Unawakened.

Unknown

1st injured Feb, 1997. Was told it was "Soft Tissue" and sent back to work - no X-rays
Late 1997 attended 1st Rehab Program to strengthen back. Mid 98 PCP took me off work. Tried going back to work over the next couple years, mostly off work due to pain.
June 2000, met with OS for first time. Did MRI , damage was L5-S1 totally blown out. Surgery done Jan, 2001.
Another Rehab program late 2001, attempted to go back to work early 2002. Slipped on water, fell flat on back screw fusion broke.
Went to 3rd Rehab program summer 2002.
Oct 2003 - 2nd Surgery, due to broken screw, had to operate from the front.
No improvement. Attended 4th Rehab program in 2004, at time It was decided NO work.
March 2006, had 3rd Surgery, this time fusion and instrumentation from Si to L3.
June 2008 Surgeon finally admitted I had Failed Back Surgery.
August 2009 WCB Finally put me on Long Term Disability
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Jackie View Drop Down
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Joined: Mar/26/2012
Location: Calgary alberta
Posts: 310
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jackie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/15/2013 at 4:04pm
I would recommend Dr. Steins website. I have been learning alot and it has great resources.Also deals with depression and fibro (in her article section) I called her office today and she answered the phone! She was very nice but said there was a one and a half to two yr wait list. I was crushed. She said she would get me into one of her groups sooner.She said she does the best she can but so many people so few Dr. This Dr. is a gem.http://eleanorsteinmd.ca/
Jackie
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Bailey View Drop Down
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Joined: Oct/22/2010
Location: Canada
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Aug/15/2013 at 4:37pm
Thanks Jackie!
 
I agree, this is a great website. And Dr Stein sounds amazing. Maybe if we all cross our fingers for you, we can get you in earlier. Mine are crossed now, come on everyone.
DDD C3-C6 with multiple osteophytes causing both moderate foraminal and canal stenosis and flattening and impinging on the spinal cord
Cervical Facet arthritis
Chronic Pain Syndrome
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Jackie View Drop Down
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Joined: Mar/26/2012
Location: Calgary alberta
Posts: 310
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jackie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/16/2013 at 11:05pm
Hello, If you google   me/cfs/fmaction you can find the latest consensus guidelines for the diagnosis and tx of me/cfs/fm its about 30 pages and is for Canadian physicians.  
Jackie
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Rocken Roni View Drop Down
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Location: Alberta Canada
Posts: 11506
Post Options Post Options   Thanks (1) Thanks(1)   Quote Rocken Roni Quote  Post ReplyReply Direct Link To This Post Posted: Aug/17/2013 at 4:36am
My fingers and toes are crossed.

Please donate to help Chronicpainsite.com continue to help others.

Until one has felt the Love of an animal,
a part of their Soul remains Unawakened.

Unknown

1st injured Feb, 1997. Was told it was "Soft Tissue" and sent back to work - no X-rays
Late 1997 attended 1st Rehab Program to strengthen back. Mid 98 PCP took me off work. Tried going back to work over the next couple years, mostly off work due to pain.
June 2000, met with OS for first time. Did MRI , damage was L5-S1 totally blown out. Surgery done Jan, 2001.
Another Rehab program late 2001, attempted to go back to work early 2002. Slipped on water, fell flat on back screw fusion broke.
Went to 3rd Rehab program summer 2002.
Oct 2003 - 2nd Surgery, due to broken screw, had to operate from the front.
No improvement. Attended 4th Rehab program in 2004, at time It was decided NO work.
March 2006, had 3rd Surgery, this time fusion and instrumentation from Si to L3.
June 2008 Surgeon finally admitted I had Failed Back Surgery.
August 2009 WCB Finally put me on Long Term Disability
Back to Top
Jackie View Drop Down
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Joined: Mar/26/2012
Location: Calgary alberta
Posts: 310
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jackie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/17/2013 at 4:27pm
This is the 2012 guidelines that are newer and shorter and were intended for G.P's to care for FM/CFS pts in their own practice. (like theyreally want to,)http://www.canadianpainsociety.ca/pdf/Fibromyalgia_Guidelines_2012.pdf
Jackie
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Stevie View Drop Down
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Location: Arizona
Posts: 27294
Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Aug/17/2013 at 4:59pm
These guidelines are extensive and well written, and I would encourage any of our Canadian members with FM/CFS to copy them off and take them to their GP's if they aren't getting the care they need!!!  Thanks for putting the link up Jackie!!

Please donate to help Chronicpainsite.com continue to help others.

My journey with chronic pain began over 30 years ago, while as a young nurse working spinal rehab, I injured my back lifting a patient. I am now fused from L2-S1. I have multiple thoracic and cervical issues. I'm a retired RN/PA and I know and understand the frustrations on both ends of the treatment spectrum of dealing with CP. It's been my goal since 2008, when we started this site, to reach out and help as many people in pain as possible. We will continue the fight as long as we can. Please, if you can help us continue to help you and others, donate. Thank you.
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