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Chronic Myofacial pain

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Tom-Tom View Drop Down
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    Posted: Dec/25/2013 at 1:21am
Thank you for the warm welcome. I have undiagnosed right flank pain. It has progressed to the point where I can no longer work. I began to have this pain about 4 years ago. I have been through all the usual tests. My gall bladder was removed with no lessening of pain. I also have, according to my G.I., have stage 3 (bridging fibrosis) liver disease. I am in pain constantly, but sometimes it's unbearable. I take opana for the pain but it doesn't always help. I don't want to whine, but I am virtually a hermit. My symptoms seem to fit Chronic Myo-facial syndrome but I have not been given that diagnosis. The only procedure I have not had is an ERCP. i was told about possibly getting pancreatitus, so I shied away from that one. My liver is not enlarged and there are no nodes on the surface. I survive only by taking pain meds. I don't to live the rest of my life this way. (I am 55). I continue to research on the net, but this really the first positive site I've found. One question and I'll stop rambling. I can't shake the feeling that my pain has something to do with my liver. Is there even a remote chance that my liver is causing this? Also, this skin on my right side is sore to the touch. I hope this is the right place to post this. Please let me know so I can get it right. I already feel a little hopeful having joined. Thanks in advance for any shared knowledge. I will certainly share what I find as well.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/25/2013 at 1:38am
Would like to hear from those who have been diagnosed with Chronic Myofacial pain. My symptoms seem to put me in this category but I have not been diagnosed. My right side, especially in the ribs, are sore to the touch. Sometimes the pain will wrap around my back and affect my left side, but not often. The worst is the stabbing pains which seem to originate above my liver. Breathing is very painful at that point. Fortunately the pain subsides as I'm not sure if I could handle that all the time.. I understand why poeple sometimes abuse their pain meds. I just want the pain to go away! I will give further background if needed. Looking forward to hear from someone. This forum is a blessing.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/25/2013 at 8:55am
Hello Tom and welcome to our site,

I would say that yes, there is a remote chance that your liver disease is causing you pain-----it certainly is in the right area.  Can you tell us a bit more about the cause of the liver fibrosis?  Were you ill, did you have hepatitis?  What are your Dr's saying about this, and treatment options, and do they think there is a connection between the fibrosis and the pain?

As far as Myofascial pain goes, there really aren't any "tests" for it and it's mostly a diagnosis of exclusion.  Pain is generally a bit more widespread than what you are describing.

Please let us know a bit more about yourself.    I am glad you found our site, and others will be along-----it's a bit slow now with the Holidays here.  Again, welcome to our website.  Stevie

Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
For help for many things...
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/26/2013 at 1:27am
Thank you for your response. The initial blood test showed elevated enzyme levels. An ultrasound was done to check my liver and that's when they found gallstones in my gall bladder. Although my pain level was high, the surgeon said it wasn't time to take it out. I went to another surgeon who removed my gall bladder and said that the pain would be gone. Wrong. My primary then told me my enzymes were "crazy high". The .G.I. I was going to had already done  a colonoscopy, endoscopy, 2 MRI's and a ct scan. My primary sent the blood test results to him. I found out later that that enzyme levels were above 200 for one and 300 for the other. I had a liver  biopsy done. When I saw him he said that the tissue sample showed damage from alcohol abuse. I have never been a heavy drinker. There is no history of alcohol abuse or liver disease. He said that he was surprised at the result himself. Nevertheless, his diagnosis was ALD. That was almost 2 years ago. I tried acupuncture, chiropractic, and even a massage. Nothing has helped. I should also mention that one MRI showed a bulging disc in one of the thoracic  vertabrea. A pain management doctor gave me 3 shots in the disc with no result. He said there was nothing else he could do. Now, even though I stopped drinking  and have lost weight, my enzyme level have begun to go up again. I have been looking for liver studies that I could participate in but haven't found any. Many people have said the pain is in my head. I would almost be relieved to have something seriously wrong. It seems like we live a life apart from others due to the pain. My wife has been a wonderful caretaker but it wears her down too.My faith in the medical system is almost nil. That's why I'm glad I found this forum. Anyway, thanks for the chance to vent.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/26/2013 at 8:00am
Tom--

I can only begin to imagine your frustration after all you have been through.  One thought----ask your GP for a referral to a Hepatologist.  A Dr who specializes in diseases of the liver.  You could have some kind of autoimmune disease process or genetic type of liver disease that is being missed.  I could be way off base, but if I were in your shoes, would be looking for answers.  I don't believe that this pain is in your head.

Sadly, some percentage of people do continue to have pain following gall bladder removal and with liver enzymes continuing to be elevated despite all of your best efforts then you need intervention.

I understand the pain of bulging thoracic discs and that pain can radiate around from the back, but what you are describing doesn't seem to fit and of course liver enzymes won't elevate from a disc problem.

I am sorry you are going through all of this, and that your wife is so supportive.  We do care and we are here to listen.  Stevie

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The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
For help for many things...
Canada: http://www.211Canada.ca/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/26/2013 at 8:55am
Thanks for the suggestion. I'll get that in process as soon as possible. Since I joined, I feel more positive. Your feedback is so important. When you feel like there is nothing else to do but just bear the pain, depression sets in as it did for me. Knowing that people do listen and want to help is uplifting, kinda like a hug. So here's a cyberhug to you and all those out there suffering.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Dec/26/2013 at 7:31pm
Hi tom tom.

I read through whet you've posted.
A person can have nonalcoholic liver disease. The disease appears like liver disease from alcohol abuse.

I read up on the nonalcoholic liver disease when my liver biopsy in 2007 showed the same. My enzymes were never deemed crazy high. I did visit a gastroenterologist who suggest I lose up lbs of my body weight as my weight is considered obese.

My levels really haven't gone back to typical levels even after having my gall stone filled gall bladder.

My primary Dr and I suspect that my medications are causing my liver and pancreas levels to be slightly elevated.

Anyway I am trying to convey to you is to keep investigating why the live levels are crazily elevated. It would be to your benefit.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/26/2013 at 9:28pm
Thanks for your post. I also read about nonalcoholic liver disease. I am considered obese as well. My gastro said the pathology of the tissue sample showed ALD. But who knows? I seem to be getting more ideas from this forum than anywhere else. This may seem stupid, but I don't remember any discussions with either my primary or gastro about why the levels were so high. I am having some difficulty with memory, but it's only with certain issues, like trying to remember if I took my meds. I did not take much of any medication before all this started, but I will talk with my primary on my next visit. I think the gastro assumed it was alcohol. I am in the process of finding another doctor. Once the current one diagnosed me, he basically cut me loose. Again thanks for your support.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Dec/27/2013 at 1:25am
There is a liver disase called fatty liver disease,and I remember someone telling me it goes along with gall bladder remova;. after all the gall bladder works with breaking down fat so liver don't work as hard. just a suggestion.


Elizabeth






osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/28/2013 at 1:20pm
Thank you for the suggestion. I am looking for another Dr. for a second opinion. I have a question. I am taking 10 mg. opana 4 times daily for about 4 months now. It seems to be less effective then when I started taking it. I guess I may be building a tolerance to it, but I am considering asking my primary to change meds. Given the fact that I have liver disease, does anyone have any thoughts on what might work without turning me into a zombie. I have to be honest and mention that sometimes I just don't care what pain meds may do. The mental battle is as tough as the physical battle. I even feel a little guilty when posting here because it seems that a lot of people here have way more to worry about than me. I applaud the courage shown here by people who are determined to live a good life in spite of their condition. I hope I can do the same. As always, I thank everyone who has taken the time to read and respond to my posts.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/28/2013 at 2:12pm
Have your liver enzymes gone up in the 4 months you have been on Opana?  Opana (oxymorphone) is contraindicated/Cautions in mild hepatic impairment.  Serious reactions include biliary spasm/abdominal pain.  Just wondering if this is making all of your symptoms worse?

I looked at Oxycodone.  (You of course would never be on anything with tylenol, so this is plain Oxycodone).  For hepatic impairment the starting dose would be decreased, and caution used (this is in just about every drug with liver disease as so many things are metabolized through the liver).

A specialist in liver disease would best know the safest pain medication for you to take.  Also, a phone call to your Pharmacist would be a good plan as they would know what opioid may be the safest for you to take.  Stevie

Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
For help for many things...
Canada: http://www.211Canada.ca/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/28/2013 at 3:48pm
Actually, they have gone up. I just went from blood tests every 3 months to monthly checks. I am waiting for the results from the first monthly test. I try to always check for side effects, etc. but I missed that one. I use WebMD. Is there another source I can use? I don't know if I mentioned it but I take Lithium 450 mg and Seroquel 50 mg daily. I have always had anger issues but the pain made things worse. This is another reason that I need better pain management. Today was rough. I took an opana this morning with no improvement. I took another about 3 hours later and the pain eased off. As I type, the pain is beginning to intensify. I feel like I'm on a roller coaster! I found a specialist but it will be after New Years before I can get an appointment. I will talk with my primary and the pharmacist I use about different meds. Thanks for bearing with me. I refuse to let this beat me. It just sometimes seems more than any one person should have to deal with.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Dec/28/2013 at 4:59pm
Tom---

I am a PA (retired and RN prior to that).  I use something called Epocrates for my drug info----it's on my phone and iPad.  There are apps for it.

I would suggest that you either go to Duke (where I went to school to become a PA) or UNC in Chapel Hill to find someone qualified to help you if you aren't getting the help you need locally.

You are going through a very rough time.  Your problems are real, and tough to manage.  You need and deserve the best you can find.  So, know that I do care.  Wish there was more I could do for you.  Stevie



Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
For help for many things...
Canada: http://www.211Canada.ca/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tkay Quote  Post ReplyReply Direct Link To This Post Posted: Dec/28/2013 at 5:08pm
Hi Tom Tom.

It would be wise since you are having problems with your memory to take someone with you to your appointments or write things down. Pain does a lot of harm to us, our memory is one of those.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Dec/28/2013 at 6:23pm
I have hepatitis c with first stage cirrhosis and my liver Dr. told me tramadol or oxycodone. I was getting deathly sick from the tramadol ,now I am on oxycodone generic 5 mg and I have no more ibs issues ,no more stomach issues, its god sent for me. Its basicly the only thing I can take, I have fibro really bad but just have to suffer thru it ,tried every med for it and got deathly sick. I even have issues with certain vitamin due to the liver issues, my absorption rate is really bad. Please make sure you don't take any meds with nsaids they will be deadly for you .
osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Dec/30/2013 at 9:22am
Finally up and feeling better. I got the Epocates site, Stevie. It is an excellent resource. I found a doc in Concord, which is pretty close. Hope to get an appointment soon.  My wife comes with me to every visit, tkay. She asks better questions than I do. She also got me pill containers for each day of the week to keep me organized. Going to ask my primary about oxycodone, Hangingon. What is absorption rate? I was taking vitamin E, Milk thistle, and schizandra. I did not have any problems with these as far as I know. I had no success with tramadol. Trying to stay positive and these posts help. Thank you all. 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 8:47am
Well I'm still here. I will be receiving long term disability beginning March 1. This month is rough because i got paid one hundred fifty dollars for the month of December. Woo-hoo! I'm finding that I'm having a hard dealing with issues like this due to pain. All I want to do is hide from the world. I try to concentrate on positive things, and this site is like therapy for me. Have to wait until Feb. to get an appt. with my primary. She really cares about her patients, and I look forward to seeing her. There's a positive thought!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 9:06am
Hi Tom,

It's really rough coming to terms with how much of our lives change when faced with CP and things like LTD.  We understand.

I wish you could see your PCP before February.  Is there a reason you have to wait so long?  Stevie

Please donate to help Chronicpainsite.com continue to help others.


The information and articles provided on our website are designed to support, not replace the relationship between patients and physicians.

Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
For help for many things...
Canada: http://www.211Canada.ca/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 10:50am
Tom I try to limit myself to 3x a day with the oxycodone,but if I am having a really bad day then I take more. I have to be really careful being as I already have cirrohsis. The tramadol was making me have severe ibs issues severe cramping and tearing my stomach apart. I was getting glychol nerve pain shots then the Dr. doing them up and left ,and the one that did it almost killed me she messed up.I have to let everyone know about me finding that Dr, again and how she eneded up lying to me,but not here.
osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 4:56pm
Stevie I just don't have the money to go, even though my copay is only 35 dollars. My wife is unemployed so it's taking everything we have and more just to make it to Feb. We have begged and borrowed, but not stolen, from family and friends. My wife and the three grandchildren we are raising have to come first. My pcp is very sympathetic and will see me almost at a moment's notice. She is at a loss when it comes to any further diagnostic tests. Constipation is getting worse. I take miralax daily at her direction, but I have having to take laxatives more and more. i hope she will prescribe hydrocodone as Hanging On suggested. Why can't I wake up and this nightmare be over?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 5:05pm
Ok Tom can I make a suggestion for something that helps me with the constipation. Get yourself a real good olive oil ,and eat or drink at least a tablespoon everyday. It helps me big time. And I also use miralax when needed. I get constipated on the oxycodone but nothing like I did on the tramadol. I can't use stool softner I get very sick from it.
osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 5:07pm
And at least you will be getting disability I may not get it cause of waiting to long. Read my forum under rants its called disgusted.
osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 5:14pm
I mean't getting the diability is another positive thing. so just gonna have to wait it out.
osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 5:27pm
Hi Tom

I'm sorry.  Truly. 

I believe that Elizabeth (Hangingon) and I have referred to Oxycodone as the medication to talk to your Dr about as you can get it without any tylenol (acetiminophen) which is harmful to your liver. 

Constipation is an on-going problem for anyone on narcotics.  Here is a thread from awhile back about that and maybe there are a few tips for you in it:http://chronicpainsite.com/mb/forum_posts.asp?TID=4621&title=narcotics-and-constipation

I surely wish I had a magic wand for all and that you could wake up and this would be over, but in the meantime, we are here and we do care.  Stevie

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Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


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Hi Tom,

I'm so sorry to hear of your situation. I just hate hearing people going without because of money. Do you have to pay $35 to see your doctor? It's just wrong to have to wait because of money.

I also need laxatives because of the meds I use, I take senekot and docusate, a softner every day. It's something I am really careful with because you can get into pretty serious trouble if you're not. Personally I ensure a bm everyday and won't go more than two days without, before I start adding or changing laxatives.

My constant companion for my pain is heat. I have a heating pad on my shoulder almost every time I sit. A long, super hot shower in the morning helps me get moving.

I was told I had Chronic Myofascial Pain Syndrome about 5yrs ago. I also have degenerative disc disease which has caused chronic pain syndrome. I attend a pain clinic that treats my CP as a whole, not specifically the myofascial stuff.

The person who I think, and I have no medical training, might be able to both diagnose and treat the fascia, is an osteopath. Maybe your pcp can refer you to one.

It can be very hard staying positive when you're in pain all the time. We're always ready to listen, talking to people who get it is always helpful. Sorry Tom, lost my train of thought.

I wish you all the best and hope we can help you get through this rough time. Take care Tom.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 6:35pm
I swear by my oxycodone I will be happy for the rest of my life taking that, its the first med in many yrs that I have no side effects.I tell my family its a godsend for me. I was living in bed when I was on the tramadol ,so sick all of the time. To think tho it took a messed up shot and almost dying for them to change my med. how pathetic is that. And the Drs. are the same way here you don't have your copay you see no Dr..
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Thank you all for your support. I will use the olive oil. I have used mineral oil. Is that ok to use? I was really surprised that I was approved for disability. I expected stiff resistance due to the fact that I have no diagnosis except chronic pain. I worked my whole life in labor intensive jobs. I also abused my body playing what we call flag football. I separated my right shoulder and had an open reduction. When I worked at the prison, I further abused my body by participating in emergency exercises and my work as a self-defense instructor. I feel like this pain is my fault, but that does nothing to relieve it. I do use a heating pad on my ribs and back. Feels good. Anysuggestions on how long to use the heating pad?
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If you use mineral oil and miralax to my opinion that's to much petroleum based stuff in your system, and that can cause an absorption problem. Olive oil is natural and you can't beat that, tastes awful but it works. And that you can even get on food stamps if need be.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 7:07pm
Hi Tom,

I pretty much live with a heating pad. Stevie might correct me here, but I think as long as it's not directly on your skin, you can use it as long as you want. You have to ensure you don't burn yourself so I wouldn't lay with your weight on a heating pad at too hi. For all over heat, a heated throw or heated mattress pad to sleep on can't be beat.

I know money is an issue, it is for so many people with chronic pain unfortunately, but hot baths, showers and your heating pad may all help.

Don't blame yourself for your pain buddy. Being in shape and enjoying life is nothing to regret. I spent 22+ years in the military and was fanatical about fitness and outworking the guys. But blaming myself won't get me anywhere and some of the traits that may have caused us injury, are also the traits that now help us deal with the toughness of daily pain.

Really glad you found us Tom, sorry you needed to, but happy you've joined this great family.

Good luck Tom
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 7:10pm
Thanks. We are the process of applying for food stamps. Our case worker is really nice, which always makes things easier. I don't like the mineral oil anyway. The oily feeling in my mouth is disgusting! Do you just eat the olive oil or do you mix it with something. I usually mixed the mineral oil with coffee. It made it a little easier to swallow. I have to keep in mind that my liver problems are separate from the pain. It seems that those of us with liver problems are restricted from a lot of meds due to potential damage to the liver. Have you had pain that has come from your liver problem?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 7:10pm
As far as heat goes?

If you are using a heating pad on fairly high heat I would only use it for 15 minutes on and an hour off.  That is for very specific areas. 

I actually sleep on a heated throw.  On low heat.  As my entire spine is affected this really helps me but it is low heat dispersed throughout my body.  It does have an automatic control mechanism that shuts it off after 3 hours, so I have to turn it back on when I wake up.

So for your shoulder-----limit the time as you want the area to be infused with blood flow for shorter periods of time when you are using a more intense form of heat.

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Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
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Thanks for the info.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hangingon Quote  Post ReplyReply Direct Link To This Post Posted: Jan/09/2014 at 9:48pm
Tom I got more liver pain when I was on the tramadol ,none so far with the oxycodone. As far as the olive oil I either just take it with a spoon ,or put it in a plate and add a few spices ,dip bread in it and eat it. You can always add to your meal too. but make sure its at least a tablespoon, anything under that doesn't help, I have to sometimes take 2 tablespoons. and don't forget olive oil has the good fat for you. So its good all the way around.
osteoarthritis,osteoporosis,osteomalacia,hepatitisc, 1st stage cirrhosis,ddd,fibro,myosistitis,chronic fatigue,Ibs,shingles pain,messed up tailbone. car accident in 1994,had right shoulder crushed, ribs popped, fracture on left side pelvis, legs and feet crushed, right ear torn off.Scoliosis. Problems with my ganglion of impar.
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K. Thanks HangingOn. Will update or maybe just whine some more.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Feb/12/2014 at 8:23pm
I'm finally back. January was a haze of pain. It was really bad. Went to doctor Friday. She upped my opana to 30 mg. extended release twice a day. I am optimistic but wary. Pain level is way down. Main side effect is feeling "woozy" and feeling tired. What a relief! I feel like I have a life again. Still having problems with constipation. I was prescribed Linzess. Nothing else has worked so I hope this does. I have also lost 22 lbs. I don't know how as my diet hasn't changed much. She is monitoring that as well as my liver enzymes. I am also having problems stemming from an enlarged prostate. I am taking Avodart, but it seems to be less effective now than when I started taking it. Going to bring that up at the next visit. I have some questions about Social Security disability. Is this the right forum to discuss it?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Feb/12/2014 at 8:28pm
Hi Tom,

This is your thread so you can post what you want. However, there is a Forum called Insurance and Disability that might get people looking for info or with info on those kind of questions.

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Feb/12/2014 at 8:34pm
I'm glad to hear your pain is way down, that's excellent. That's a lot of weight to lose if you haven't changed your diet, I'm glad you're being monitored. I'm sure she's checked your sugar.

The constipation is such a common problem with strong pain meds, I need laxatives daily. There's an article on Opioids and Constipation, I'll find it for you. I use senekot and docusate, think I have about 5 or 6 different types of laxatives and sometimes need to combine a few. But it's very important not to let it go on or you can end up in a world of hurt.

Nice to see you Tom, not for this reason but still
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Feb/12/2014 at 8:39pm
In the Forum, Medical Information, there is a thread on Narcotics and Constipation. If you haven't read it, never mind. I just scrolled up and see Stevie has already provided the link. Lol.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Feb/12/2014 at 8:58pm
Thank you Bailey. She didn't say anything about sugar levels. I am a little worried about the weight loss. I tend to get obsessive about my medical issues, so I have to keep things in perspective. My primary has been very caring and has been assertive in getting tests, etc. for me. She promised me that she would take care of my pain and she really helped in prescribing the higher strength opana. This site has also been a great help. I feel so alone, like the world is going on without me. I was so active at work and had a very physically demanding part time job as well. And then suddenly, it seemed, here I was flat on my back. I so appreciate the care and concern from all of you. I'm not so alone when I'm here. I'll post on the forum you mentioned. Thanks again
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Feb/12/2014 at 9:23pm
I hear you Tom, and you're not alone.

I am surprised she hasn't tested your sugar though. I thought that was the first thing they checked with unexplained weight loss, but I have zero medical training so I could be way off.

I totally understand what you're saying about life going by, Tom. I was in the military and my job was physically tough. I was also very athletic. A lot of pride and satisfaction can disappear when pain stops you from accomplishing those things. But that doesn't mean you can't get back to doing things you love if you can get the pain under control.

I'm so pleased to hear you have a great gp who promises to work with you and support you. That is sooo important. We're here to offer all the support you want. Between the bunch of us things will get better.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Feb/13/2014 at 2:26am
How does the sugar effect weight loss? Could that be why I feel tired more lately? My sister is diabetic. Nobody else in my immediate family has it and don't know of anyone in my extended family that is diabetic
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Feb/13/2014 at 6:37am
Hi Tom,

Stevie will be by in awhile and can answer your question, I've got now medical training so can't help. All I do know is sudden unexplained weight loss can be caused by diabetes.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Feb/13/2014 at 6:57am
Tom.

Blood glucose levels are almost always checked during any PE along with kidney and liver functions, etc.  So, call your Dr's office and ask what your most recent glucose reading is.

You do know that you can purchase a glucometer at any drug store.  They often give it for free as the strips are expensive.  But if this is a concern to you, then you could do that and test yourself if you are worried about diabetes. 

But, if you have an unexplained weight loss that needs to be addressed with your Dr.  It is a sign of diabetes, but could be from any number of things, and so a full blood work up and urinalysis is needed. Also, other signs of diabetes include severe thirst and frequent urination.   Stevie

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Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
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Thanks Stevie. I am more concerned about cancer. My father and mother died from, dad at 54 and mom at 80. Several more on my dad's side died from cancer as well. In my generation my sister and cousin both had cancer and are in remission. I do have an extreme thirst problem so I will check with my primary about the glucose level. Thanks for all the information. You are all the best. Being on here helps me to keep going and fighting. I wish I could be as helpful instead of being so needy!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Feb/13/2014 at 5:34pm
Tom---

We are here to help.  When you get your issues under control and have some answers, you will be here to help others.  I am sure of it.  For now, you take good care and get answers.  And if your Dr isn't doing the job---keep looking.  We have all learned that persistence is vital.  Hugs, Stevie

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Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bailey Quote  Post ReplyReply Direct Link To This Post Posted: Feb/14/2014 at 7:33am
Morning Tom,

When is your next gp appointment? Extreme thirst and weight loss are signs of diabetes, but it's hard to imagine you haven't been tested before now. But, asking your doc can't hurt.

Glad you're finding the site so helpful, I think it's the best place in the world for anyone dealing with chronic pain. Take care, and keep fighting.
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Cervical Facet arthritis
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tom-Tom Quote  Post ReplyReply Direct Link To This Post Posted: Feb/14/2014 at 12:46pm
I am going in for blood test for my liver. I will check my weight and and ask my doc to check glucose level as well. This may sound dumb, but what else could cause weight loss and thirst? I 'm going to research it, but your expertise is very helpful Stevie
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Stevie Quote  Post ReplyReply Direct Link To This Post Posted: Feb/14/2014 at 1:28pm
Tom,

My two best guesses would be diabetes or some type of kidney issues.  So when checking your liver enzymes, ask that kidney functions and glucose levels also be checked.  But, your Dr should be doing a thorough blood work up to investigate this further.  Stevie

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Spinal Fusions L5-S1 and L4-L5. Cervical DDD, stenosis, spondylosis, spondylolisthesis and facet arthropathy throughout cervical spine from C3-C7. Thoracic Spine: dextroconvex curvature of the thoracic spine, centered at approximately T8.(Scoliosis with 20 degree curve). At T7-8, a disc bulge. Degenerative disc disease T7-T9. Disc dessication from T3-T11.


NATIONAL SUICIDE HELPLINE 1-800-273-TALK (8255)
http://www.crisisclinic.org/
IN THE UK 0845790 90 90
http://www.samaritans.org/
For help for many things...
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I will do that. Thank you.
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